Dear Baby Caitlyn, born in 22.9.16 has a rare genetic metabolic disease called Infantile Pompe Disease and her treatment annually costs an estimated £50K per year. Her body is deficient of acid- alpha glucosidase (GAA) which causes the glycogen pile up on every part of her body and impacts the functions of her muscle, this included her heart muscles causing Hypertrophic Cardiomyopathy (HOCM) and obstructed the growth of Caitlyn. She was recently diagnosed in June this year. Her life is being threatened if she does not receive the treatment immediately.

The trouble is currently her treatment (Enzyme Replacement Therapy, Myozyme) is not funded by Malaysian government and her parents (my high school friend Adeline Yeap and her husband) are struggling to fund this on their own.

According to the dosage approved by US Food and Drug Administration (FDA), 20g of Myozyme is used for every 1kg of weight and currently Caitlyn’s weight is 6.5kg as of 14/7/17. A bottle of Myozyme is 50mg and costs RM450. Based on the weight, Caitlyn requires 3 bottles of Myozyme per therapy. Thus, only the drug itself cost RM7620 (£1,350) and prescription will increase according to the increase of her weight. Enzyme Replacement Therapy is prescribed bi-weekly, and one month's prescription costs RM15,240 (£2700). There will be other added costs including hospital medical fees.

We are doing the little we could to help ease the burden of Caitlyn's parents by setting up this crowdfunding and running for her this October 22nd in the Greenwich 5K/10K run.

Your donations will definitely be much appreciated by her parents.