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Jane Lim and Friends raised £330 from 8 supporters.

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Closed 13/11/2017

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£330raised of £1,000 target by 8 supporters

    Weʼve raised £330 to help fund Baby Caitlyn's Enzyme Replacement Therapy for a rare genetic metabolic disease called Infantile Pompe Disease.

    Greenwich, United Kingdom
    Funded on Monday, 13th November 2017

    What is crowdfunding?

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    Story

    Dear Baby Caitlyn, born in 22.9.16 has a rare genetic metabolic disease called Infantile Pompe Disease and her treatment annually costs an estimated £50K per year. Her body is deficient of acid- alpha glucosidase (GAA) which causes the glycogen pile up on every part of her body and impacts the functions of her muscle, this included her heart muscles causing Hypertrophic Cardiomyopathy (HOCM) and obstructed the growth of Caitlyn. She was recently diagnosed in June this year. Her life is being threatened if she does not receive the treatment immediately.

    The trouble is currently her treatment (Enzyme Replacement Therapy, Myozyme) is not funded by Malaysian government and her parents (my high school friend Adeline Yeap and her husband) are struggling to fund this on their own.

    According to the dosage approved by US Food and Drug Administration (FDA), 20g of Myozyme is used for every 1kg of weight and currently Caitlyn’s weight is 6.5kg as of 14/7/17. A bottle of Myozyme is 50mg and costs RM450. Based on the weight, Caitlyn requires 3 bottles of Myozyme per therapy. Thus, only the drug itself cost RM7620 (£1,350) and prescription will increase according to the increase of her weight. Enzyme Replacement Therapy is prescribed bi-weekly, and one month's prescription costs RM15,240 (£2700). There will be other added costs including hospital medical fees.

    We are doing the little we could to help ease the burden of Caitlyn's parents by setting up this crowdfunding and running for her this October 22nd in the Greenwich 5K/10K run.

    Your donations will definitely be much appreciated by her parents.

    Updates

    3

    • Jane Lim and Friends9 months ago
      Jane Lim and Friends

      Jane Lim and Friends

      9 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Jane Lim and Friends9 months ago
      Jane Lim and Friends

      Jane Lim and Friends

      9 months ago

      Hi guys, Good news, we have completed our run today! It was an amazing day out at Greenwich Park for our run. It was cold and windy at first but we warmed up after the first km and luckily for us it was dry today! The uphill was a struggle but we were encouraged by all your support and the crowd cheering us on at the park. All of us improved on our personal best times. Thank you so so much for all your donations for Caitlyn- within the UK and overseas! We will be accepting donations until 10/11/17.

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    • Jane Lim and Friends1 year ago
      Jane Lim and Friends

      Jane Lim and Friends

      1 year ago

      Thank you so far for all the donations coming in! It was a brilliant start to my training this morning with the breezy summer weather. It is exactly 90 days till the run and we will need all the support we can get! There are now 6 of us doing the run for this crowdfunding for Baby Caitlyn and we hope to recruit more, so come along and join us if you are free on the 22nd October at Greenwich Park! Please kindly spread the message/crowdfunding link to anyone who can donate to help Baby Caitlyn! Xie Xie,Terima Kasih, Merci, Danke, Grazie!

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    1 year ago

    Jane Lim and Friends started crowdfunding

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    Page last updated on: 10/22/2017 9:31 PM

    Supporters

    8

    • Amanda Hui Min Hor

      Amanda Hui Min Hor

      Oct 22, 2017

      Well done Jeng and Jane! Much love to baby Caitlyn and her family x

      £100.00

    • Prasun Chakravorty

      Prasun Chakravorty

      Oct 22, 2017

      Congrats Jane and Jeng!!

      £30.00

    • Suzette Hirst

      Suzette Hirst

      Oct 10, 2017

      Good Luck Jane. Love and hugs to Caitlyn

      £20.00

    • TIN TIN WIN

      TIN TIN WIN

      Jul 31, 2017

      Good luck, Jane !!

      £50.00

    • Layla Al-Ansari

      Layla Al-Ansari

      Jul 21, 2017

    • Clare Battisti

      Clare Battisti

      Jul 20, 2017

      Good luck! Xxx

      £10.00

    • Kailyn Soo

      Kailyn Soo

      Jul 19, 2017

      Good luck Jane and and all the best baby Caitlynxx

      £100.00

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    About Crowdfunding
    About the fundraiser
    Jane Lim and Friends

    Jane Lim and Friends

    Greenwich, United Kingdom

    My friends and I are running on the October 22nd in Greenwich Park for this cause.

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