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Frankie Gibbons raised £755 from 20 supporters

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Closed 13/09/2019

0%
£755
raised of £5,578 target by 20 supporters

    Weʼve raised £755 to Help fund my trip to Serbia which is for Stem Cell therapy. It's believed to slow the progression of my disease, Friedreich's Ataxia.

    Funded on Friday, 13th September 2019

    Don't have time to donate right now?

    Story

    Ataxia is a genetic neurological condition that causes problems with balance, co-ordination and speech. It is also linked to scoliosis, heart disease and diabetes.

    Ataxia is progressive, meaning it gets worse over time. Ataxia can leave sufferers completely dependant on others for their needs and it is severely life shortening with an average life span of 35 years. Over 10,000 adults and children in the UK have ataxia but there is currently no cure.

    This fundraiser is for myself Frankie Gibbons, a sufferer of Friedreich's Ataxia. I started showing symptoms at 18 months and was misdiagnosed several times before being properly diagnosed at 5 years old. I was walking with a walking stick by 8, a frame by 10 and despite my reluctance, moved into a manual wheelchair at around 13 years old. Now 23 years old and in spite of the challenges i face in every day life, I have moved into my own property and still manage to keep a smile on my face everyday!

    Last year i took part in a study to see how effective a stem cell inducing drug is in Bristol. The results came back positive, but i have to wait 2 years before this treatment is funded by the NHS! This is why i have made the decision to go to Serbia at the end of September to repeat this treatment as my disease is progressive and i would like to do this whilst i still can!

    Thank you for taking your time to read this and any donations would be hugely appreciated however small they may be.

    Updates

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    Frankie Gibbons

    Updates appear here

      5 years ago

      Frankie Gibbons started crowdfunding

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      Page last updated on: 8/31/2019 09.19

      Supporters

      20

      • Terry and Sue

        Terry and Sue

        Aug 31, 2019

        All the best with your venture

        £20.00

      • Simon & Joy

        Simon & Joy

        Aug 30, 2019

        Good luck Frankie wishing you all the best for Serbia.

        £100.00

      • Wendy & Ian Palin

        Wendy & Ian Palin

        Aug 24, 2019

        We are related to you via the Corfield family. Wendy’s Grandma was Jessie Corfield who is the sister of Bill Corfield. He was your great Grandad.

        £100.00

      • Anonymous

        Anonymous

        Aug 23, 2019

      • Georgia

        Georgia

        Aug 22, 2019

        Good luck Frankie!

        £15.00

      • Anonymous

        Anonymous

        Aug 22, 2019

        Good luck!

        £150.00

      • Anonymous

        Anonymous

        Aug 22, 2019

        Good luck Frankie! xx

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      Frankie Gibbons

      Frankie Gibbons

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