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Danielle Sparks raised £2,598.55 from 38 supporters
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Closed 31/05/2019
Weʼve raised £2,598 to cover costs for prosthetics & adaptations as Freya gets older
- Funded on Friday, 31st May 2019
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Story
Freya is our youngest daughter, shes 18 months old. My pregnancy with Freya was perfect no worries the only extra check ups i had to have was because she was in a breech posistion.
When Freya was born it was quite clear that things were not all how they were meant to be but no doctor had the answer. We did our own research but when she was 3 weeks old we saw a specialist and although he had never seen the condition before confimed to us that she had Bilateral Tibial Hemimelia. It is a very rare condition affecting 1 in 3000000. This is when the tibia bone (shin bone) has either not formed or formed Incorrectly, in Freya’s case its not formed at all and it appears no knee joint has formed.
She now has had her surgeries one beig a PDA heart closure and a double through the knee amputation. NHS Wales at present do not fund sports blades I know there are varies organisations looking into getting this changed. We want Freya to lead a compleley normal life and do anything any other child would do.
We are fundraising as prosthetics do not come cheap and we never want to be in a posistion that due to money she is not able to do something. We have a very long hard journey ahead as a family and have noticed the lack of support there for families in our area going through situations like ours & in the future would love to change this and its something that we will look at fundraising for in the future.
Thank you to all our family, friends and complete strangers to our family for your support so far it really does mean the world to us 💖
Updates
3
- 5 years ago
Danielle Sparks
5 years agoSo Freya is 17 months now and had her amputations 😍 just look how well she was doing just 3 days after she makes me burst with pride
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- 6 years ago
Danielle Sparks
6 years agoShare this update to help us raise more
- 6 years ago
Danielle Sparks
6 years agoI just want to say thank you so much to everyone who has donated! It means the world to us that our baby girl has so much support 💖 we get to meet Freya's prosthetics team at the end of the month which is a bittersweet feeling so things are moving in the right direction ready for her surgery in the summer 💖
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Danielle Sparks started crowdfunding
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Supporters
38
Anonymous
Dec 25, 2018
£30.00
Sharon Harris - Adornare
Dec 7, 2018
The cost of my services for your wedding day have now been donated to help towards allowing Freya to live a full active life. Congratulations on becoming Mr and Mrs Gibbs , such a beautiful family xx
£425.00
Matt lewis
Jun 15, 2018
All the best
£100.00
Anonymous
Jun 5, 2018
Hope this helps you little darling . Xx
£20.00
Jayde Clark
May 22, 2018
£10.00
Anonymous
May 11, 2018
£50.00
Abi Parry
May 8, 2018
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