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£2,143raised of £12,000 target by 36 supporters

Weʼre raising £12,000 to cover costs for prosthetics & adaptations as Freya gets older

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Story

Freya is our youngest daughter, shes 5 months old. My pregnancy with Freya was perfect no worries the only extra check ups i had to have was because she was in a breech posistion.

When Freya was born it was quite clear that things were not all how they were meant to be but no doctor had the answer. We did our own research but when she was 3 weeks old we saw a specialist and although he had never seen the condition before confimed to us that she had Bilateral Tibial Hemimelia. It is a very rare condition affecting 1 in 3000000. This is when the tibia bone (shin bone) has either not formed or formed Incorrectly, in Freya’s case its not formed at all and it appears no knee joint has formed.

She now requires before her first birthday a double through the knee amputation. NHS Wales at present do not fund sports blades I know there are varies organisations looking into getting this changed. We want Freya to lead a compleley normal life and do anything any other child would do.

We are fundraising as prosthetics do not come cheap and we never want to be in a posistion that due to money she is not able to do something. We have a very long hard journey ahead as a family and have noticed the lack of support there for families in our area going through situations like ours & in the future would love to change this and its something that we will look at fundraising for in the future.

Thank you to all our family, friends and complete strangers to our family for your support so far it really does mean the world to us 💖

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Updates

2

  • Danielle Sparks5 months ago
    Danielle Sparks

    Danielle Sparks

    5 months ago
    Update from the Page owner

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  • Danielle Sparks6 months ago
    Danielle Sparks

    Danielle Sparks

    6 months ago

    I just want to say thank you so much to everyone who has donated! It means the world to us that our baby girl has so much support 💖 we get to meet Freya's prosthetics team at the end of the month which is a bittersweet feeling so things are moving in the right direction ready for her surgery in the summer 💖

    Share this update to help us raise more

6 months ago

Danielle Sparks started crowdfunding

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Page last updated on: 6/15/2018 8:28 PM

Supporters

36

  • Matt lewis

    Matt lewis

    Jun 15, 2018

    All the best

    £100.00

  • Anonymous

    Anonymous

    Jun 5, 2018

    Hope this helps you little darling . Xx

    £20.00

  • Jayde Clark

    Jayde Clark

    May 22, 2018

    £10.00

  • Anonymous

    Anonymous

    May 11, 2018

    £50.00

  • Abi Parry

    Abi Parry

    May 8, 2018

  • Natasha Worrall

    Natasha Worrall

    Apr 24, 2018

    Lots of love from Tesco Aberystwyth 4630 xxxx

    £971.55

  • Anonymous

    Anonymous

    Apr 4, 2018

    Very best wishes, hope all goes well

Danielle Sparks

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Danielle Sparks

Danielle Sparks

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