Weʼve raised $0 to Please help me fight for my rights to social insurance and for medications. Suffering from EDS and severe pains
- Stockholm, Sverige
- Closed on Wednesday, 20th September 2017
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Hello, my name is Frida, I'm 25 years old and I live in Sweden.
I have lost almost everything in my life. I am mostly housebound and cannot participate in a normal everyday life with hobbies, work, friends and family life.
I suffer from a few different conditions, and Hypermobile Ehlers Danlos Syndrome is the main one. EDS also has a high co-morbidity meaning that alot of other diseases are present when having EDS.
This condition gives me constant severe pain, dislocating joints (hurts alot!), heavy tiredness, and whenever I use my body my pain worsen and I get dizzy, feeling nausea and finally - I am passing out. During night I never sleep more than 2-4 hours. I haven't slept more than that for 10 years.
I haven't been able to attend school or work for 6 years now.
I've had to given up alot of hobbies such a riding, running, painting, helping at the cat shelter etc. I had to give up my dream education and job.
Sadly this is a syndrome that is not well-known in Sweden. Not even the doctors know much about this, and sadly I cannot work at this time. The Swedish governments social insurance denies me insurance, since this disease isnt viewed as severe, painful and also they don't understand the co-morbidity of this disease. They view me as 100% healthy, although my doctors do not agree with them!
I now need a lawyer to fight my rights, and I've sold off all my belongings that had any actual worth. But this is not enough. Lawyers are very expensive in Sweden.
During this time I cannot afford to buy my medications either, which worsen my situation and I am afraid this will soon become unbearable to live thru.
Please share this with your friends. I wish that this fundraising also can bring light on unknown diseases like Ehlers Danlos Syndrome.
Every little amount makes a difference, and helps me get closer to having a fair life.
I also hope that if I can have a lawyer on my case, that my case can help other people in my situation.
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