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£56,643raised of £60,000 target by 1138 supporters

Weʼre raising £60,000 to help Violet get the surgery she needs for her future life.

Sale, UK
18 days to go

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Story

Two years ago at aged 10 I noticed that Violet was curving to the right when sitting. After visiting our GP, she was finally referred to Manchester Children's Hospital the following year, May 2017, where we received the official diagnosis of Adolescent Idiopathic Scoliosis. Scoliosis is a curvature of the spine, which if severe enough can lead to a lifetime of debilitating pain and difficulty breathing. Her curve measured at 52 degrees at the time, but at that stage I was not too concerned as I was familiar with mild scoliosis in adults so I was sure that we could stop it progressing and that she could manage it through her life. We hit the yoga, physio, and visited an osteopath every 4 weeks for the next year. We hadn't realised just how aggressive adolescent scoliosis can be, and at her next x-ray a few weeks ago, on the 29th June this year, we had the devastating news that her curve has now advanced to over 80 degrees, and as she continues to grow it will only continue to progress further. She has reached the stage now where she is in pain a lot of the time, and the curve will be starting to press on her lungs and affect her breathing (I only recently connected that she has been complaining for a while that her breath sometimes wheezes), so her only option now is surgery to correct it, which she needs as soon as possible. The only option offered here on the NHS currently is spinal fusion, which her consultant at Manchester wants to book her in for next month. This involves two rods being screwed to either side of her spine, and a bone graft over it (taken from her hip), causing the spine to fuse into a solid mass. Although this would straighten her spine, this would also mean she would be unable to bend her back, and her spine would be forced to stop growing at age 12. There are higher risks of osteoarthritis and osteoporosis of the spine later in life after fusion. We desperately wanted to avoid this. There is a newer non fusion surgery called VBT, vertebral body tethering, and an advanced form of VBT called ASC, anterior scoliosis correction, which is much less invasive, less complications, and keeps the flexibility of the spine and would allow it to continue to grow. This surgery has been performed regularly in the US since 2012 with good results. Instead of fusing the spine, a flexible cord is attached to the outside of the curve, pulling it partially straight during surgery, then as she continues to grow, the spine continues to pull straighter. Much like braces work on teeth. This surgery would hopefully allow Violet to live a normal pain free and flexible life, but also wouldn't rule out possible fusion in the future if that had to happen. Once fusion is done there is no going back. Frustratingly VBT was offered for a short time in 2016 on the NHS, but funding has been withdrawn for the time being while longer term results are being monitored. In a few years time this will no doubt be offered again on the NHS, I believe it is the future of spinal surgery, but this will be too late for Violet. We are on a race against time now. At her age we know from her x-rays that she still has plenty of growing to do, but also that she is already starting to lose the flexibility of her spine, which apparently happens around this age, making any type of surgery to straighten it more difficult. Many children from the UK have already been to Turkey, Germany, Spain and the US for this surgery with great results. We met the surgeon in Barcelona two weeks ago and Violet is a good candidate. We are hoping to book her in for ASC surgery in Barcelona in October and trusting in the universe that we can raise the money for it. There's no way we can raise this sort of money alone, but I have to believe that we can do it and do what is best for Violet and her future life. I can't let her future be dependent on finances. We are so very grateful for any donation to help her, big or small. Thank you from the bottom of our hearts, from all of Violet's family who love her very dearly. xxx

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Updates

3

  • Gaynor Mullin20 days ago
    Gaynor Mullin

    Gaynor Mullin

    20 days ago

    Violet is now 8 days post surgery! It was a long operation lasting 8 hours, but her amazing surgeon reduced her curve from a huge 94 degrees (it had progressed even further since her consultation in July) down to an incredible 28 degrees. As she still has growing to do this should improve further in time. She has been discharged yesterday from the hospital to continue back at our apartment here with her recovery and physio. We are incredibly grateful to every one who helped to make this surgery possible for her. Onwards and upwards from here ❤️

    Update from the Page owner

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  • Gaynor Mullin2 months ago
    Gaynor Mullin

    Gaynor Mullin

    2 months ago

    Thank you so much for all your support. We have been truly overwhelmed by the kindness shown to us. Including offline donations we have reached target, which we didn’t expect in a million years, let alone in such a short time. Violet’s surgery will go ahead on the 22nd October. Thank you so much for giving her this chance. There are not words enough to express the gratitude we feel for every single donation. We are still looking at accommodation which is much more than initially anticipated, so every donation is still appreciated 🙏🏻

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  • Gaynor Mullin3 months ago
    Gaynor Mullin

    Gaynor Mullin

    3 months ago

    Thank you so much for your support, it has been absolutely overwhelming how generous people have been. We are almost at a sixth of our target in just a weekend. From the bottom of our hearts, thank you, from her family xx

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3 months ago

Gaynor Mullin started crowdfunding

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Page last updated on: 11/14/2018 4:52 PM

Supporters

1138

  • Avril Corbett

    Avril Corbett

    Nov 14, 2018

    Glad to see the progress. Avril

    £10.00

  • Ed Billingham

    Ed Billingham

    Nov 9, 2018

    Hi Gaynor, We did a small gig in Prestbury and the donation is from that. So pleased things have worked out.Regards,Ed and Jo

    £43.10

  • Chris Smith

    Chris Smith

    Nov 7, 2018

    Loved the dolls' house. Good luck Violet x

  • Anonymous

    Anonymous

    Nov 3, 2018

    More donations from the Halloween Doll Asylum from Karen, Kathryn and Angela x

    £20.00

  • Lisa Rogers

    Lisa Rogers

    Nov 2, 2018

    Visited at Halloween, brilliant 😊 Really hope Violet’s doing ok and treatment is a success x

    £10.00

  • Rachael

    Rachael

    Nov 2, 2018

    From everyone who came to the Halloween Doll Asylum, screamed and donated. X

    £209.19

  • Anna Brown

    Anna Brown

    Nov 1, 2018

    Sounds like a successful operation, wishing you a speedy recovery and a bright and pain free future!

    £10.00

Gaynor Mullin

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Gaynor Mullin

Gaynor Mullin

Sale, UK

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