Jamie along with his very supportive group of friends, Tyron & Verity Ebdon, Iain Batten, Bill Morrish & Carl Davis will be walking 100km over 2 days to raise money for charity to help our son George.

In May 2024 George was diagnosed with Spastic diplegia, a form of Cerebral Palsy. For those that aren't sure, this is a form of Cerebral Palsy that is a chronic neuromuscular condition of hypertonia and spasticity in the muscles of the lower extremities of the body.This can cause constant tightness or stiffness usually in the legs, hips and pelvis.

This could mean that George may never be able to walk independently or at all.

As you can imagine this was something that no parent wants to hear and we were totally heartbroken, but we wanted to be positive for George and do everything we could to support him.

Following this, a month later, after his CP diagnosis George had his first epileptic seizure. We can honestly say this was the most incredibly scary moment of our lives.

We called 999 instantly and whilst on the phone to the paramedics George stopped breathing, I was told to preform mouth to mouth on my little baby boy and for a moment my whole life froze.

George’s colour came back and he screamed out, followed by a 24 minute seizure where he was blue lighted to A&E.

A week later George had a number of seizures where we were in and out of hospital, test after test done and referral to a neurologist.

After an EEG the specialist explained that George had unusual signals in his brain pattern and was diagnosed with Epilepsy.

After many appointments George was put on medication to help suppress his seizures. This has been a long journey to get to the correct medication and the correct dose.

Nights are difficult for George, a normal night would mean waking from 6-10 times a night due to muscle spasms related to the cerebral palsy.

We were given various types of medication, again something that has been difficult and still not found anything that really helps George, so later this year they are going to perform surgery to help reduce the tension in his legs.

As George is approaching 2 years old in February, he just wants to be up and about independently so this is where the incredible charity Designability will change his life.

George was accepted for a Wizzybug electric wheel chair which he is able to use independently himself while at home, at nursery and while out doing family day to day activities. This will really help his independence and give him so much more opportunity to do things for himself.

During all of this we have had the most incredible support from the physiotherapy team at Dorchester Hospital who were seeing George twice a week and providing us with support so we could continue the physiotherapy with George at home daily.

We really want to help other families who may go through what we are going through. The Designability charity rely on donations, which is where your donation will help by providing other children like George an electric wheelchair they can operate themselves. George has been lucky enough to receive one and has given him the freedom to move around alone. We also want to help provide further research and support for George and other children suffering with Epilepsy through Young Epilepsy, who are a charity that specialise in the research and support to children and families suffering with epilepsy, and therefore want to split any donations raised between both charities.

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