I'm raising £150,000 for Shane Fry and to help in the purchase of an accessible bungalow. Even if we do get a disability facilities grant and sell our current home Shane needs to move to a house that will be spacious enough to provide him with the home hospital equipment and environment he needs. Hence we need a sizeable amount of money to add to ours to achieve a hopeful quality of life for him.

Shane was a mechanical draughtsman by profession, a talent wildlife photographer and guitarist, cyclist, wood carver and he started learning to make jewellery. He is a father to three adult children whom he has supported all of his working life.

In November 2023, while at work he experienced an extreme headache, fell unconscious and suffered a haemorrhagic pontine, brainstem stroke at the age of 56. When he started to come out of his coma after two weeks, he could only blink his eyes. He had locked in syndrome.

Almost, three years later, Shane's recovery is still ongoing but he will always remain severely disabled. He still has incomplete locked-in syndrome and has limited control of his arms and legs, so is bed bound. Although, he has an electric wheelchair that he uses every day, his carers have to control it. He cannot speak and uses eye gaze and an alphabetical e-tran board to communicate. He is partially sighted, partially deaf, cannot speak, is fed through a tube, although he attempts to eat blended food once a day. He has severe spasticity and ataxia which makes standing and movements such as walking impossible.

Unlike other strokes, this type of stroke is catastrophic. Shane has full mental capacity and full cognitive abilities but he is trapped in a body that wont work for him and all his talents and things he lived to do are lost to him.

He still enjoys watching football, F1 and many other sports and with assistance enjoys a game of chess and being driven around the countryside to listen to birds with the help of his hearing aids. He deserves an improved environment. Shane currently doesn't have a wet room so has had bed baths only since his hospital discharge and he needs rehab and assistance equipment that will improve his movements and quality of life but the pension pot that we are currently utilising has limited funds.

We hope you will consider his story

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