The Seaford College Kayaking Team is paddling 125 miles from Devizes to Westminster to help Ellie raise £75,000 to get her to America where she can have a gastric pacemaker fitted as well as raising awareness for gastroparesis & POTs

Ellie is currently still not able to take any food by mouth and relies on pre-digested medical feeds supplied by the hospital to maintain her weight. The risk of her deteriorating increases the longer we leave her treatment, yet she is very keen to not have her feeding tube back. We are desperately hoping to be able to get her a gastric pacemaker which is no longer funded by the NHS in the hope it will help her stomach contract, therefore allowing her to eat.

Ellie has created this video in the hope to raise awareness of her conditions - gastroparesis,POTs & potentially Ehlers danlos syndrome hypermobility type. But also to explain what she has been going through. Many people have no idea she is even unwell, especially now her feeding tube has been removed.

She has numerous appointments and further tests over the next few months and will be posting updates as results come

Please help get Ellie eating again!

*Any excess money raised will be donated to research into gastroparesis.*