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Sally Holt raised £13,655 from 244 supporters

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Closed 08/06/2020

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£13,655
raised of £75,000 target by 244 supporters

    Weʼve raised £13,655 to take Ellie to America where there are further treatments available

    Funded on Monday, 8th June 2020

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    Story

    After having spent the majority of the last year in hospital Ellie has created these videos to help explain and show what she has been through. Having been previously fit and healthy, it is just crazy how so much has changed so quickly - we honestly can't believe it!

    Having attempted many standard treatments throughout these years such as medications to help sickness, drugs to try and speed up the stomach and bowel contractions, pain killers, etc we tried to look at potentially getting the gastric pacemaker for Ellie, however this was unfortunately clearly no longer an option as it only helps the stomach and sadly Ellie's small bowel is affected. Ellie then had to end up with feeding tubes, and after further deterioration ended up in Intestinal failure requiring Home TPN (Intravenous nutrition through a line in the top of her heart). Which is keeping her at home thankfully however we really don't want Ellie to be on this long-term, so our hope is to get her to America to have IVIG (Immunogloblin) therapy - which has been proven to dramatically improve this horrendous condition.

    TPN has really improved Ellie's health, allowing her to gain weight back, have energy and look healthy! However serious complications can come along with it including high risk of getting Sepsis, over years it can cause liver damage, blood clots can be common - as ellie already has experienced as well as potentially gut function becoming worse from it not being used! So its certainly scary and we want to do all we can to get her off it. Intestinal failure is the rarest organ failure there is and is extremely hard to manage and treat.

    After Ellies recent 3 month hospital admission, she is currently getting back to used to being home and has just learn how to connect and disconnect the TPN by her self which gives bit more independence! She has a few appointments coming up to hopefully talk about the next stages. She then is hoping to be able to go back to school in September to try and get some of her A levels! But as always, we are totally overwhelmed by all the support everyone has and is offering, it certainly helps us in so many ways and gives hope that we will be able to get ellie eating again!!

    Any excess money raised will be donated to research into gastroparesis. There are so many other, mainly girls, suffering from gastroparesis and there is an urgent need to raise funds to support this debilitating condition.

    We would be beyond grateful for any support you may be able to offer, thankyou.

    Updates

    6

    • Sally Holt2 years ago
      Sally Holt

      Sally Holt

      2 years ago

      Ellie sadly had to go back into hospital for a further 6 weeks - after being out on TPN she started becoming very bloated and in pain. This was apparently caused by bile which was collecting in her stomach . 2 weeks ago she had a venting tube placed which now allows her to drain away this excess fluid. She is now out of hospital and hoping to return to school next week to get ‘A’ levels in order to pursue her dream of becoming a doctor.

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    • Sally Holt3 years ago
      Sally Holt

      Sally Holt

      3 years ago

      Sadly Ellie went back into hospital 5 weeks ago and her small bowl is now affected so was transferred to an intestinal failure unit a week ago. She is now on TPN to get her weight and health back. There is a new treatment at the Mayo Clinic in the states which we are hoping to be able to take her there for. Thanks for all your support.

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    • Sally Holt3 years ago
      Sally Holt

      Sally Holt

      3 years ago

      Ellie was approached by a journalist to help raise awareness of her cause- Here’s the link below- please do share it- ://inews.co.uk/news/real-life/teenager-whose-stomach-became-paralysed-hasnt-eaten-for-a-year/

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    3 years ago

    Sally Holt started crowdfunding

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    Page last updated on: 10/7/2019 20.18

    Supporters

    244

    • ALIGN JV / HS2

      ALIGN JV / HS2

      Oct 7, 2019

      We all wish you the very best for the future and hope that your fund raising continues to grow towards your target as soon as possible.

      £322.00

    • Charlotte Penniceard

      Charlotte Penniceard

      Jul 27, 2019

      £30.00

    • Jan

      Jan

      Jul 24, 2019

      Such a touching story, Sally you have a beatiful and brave daughter inspirational to us all

      £10.00

    • David

      David

      Jul 12, 2019

      Touched by the story - wishing you all the very best

      £40.00

    • Ian Mackintosh

      Ian Mackintosh

      Jul 3, 2019

      £20.00

    • Wendy Gairdner

      Wendy Gairdner

      Jul 1, 2019

      Hi Sally, I do hope you find the help you need so you can get back to enjoying life again.

    • Helena Kingdon-Butcher

      Helena Kingdon-Butcher

      May 4, 2019

      £20.00

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