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£3,050raised of £2,000 target by 84 supporters

Weʼre raising £2,000 to Help Ben get on his Trike and more!!!

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

On the 25th July a group from Portico will be taking on a 10km run in support of Ben Clarke. This group includes: Alex Clarke, Carly Jarvis, Modestas Povilitas, Victoria Jennings, Oliver Hiner, Ewa Dabydoyal, Amy Gentles-Mickie, Matt Urbaniak, Greg Bodnar, Cat Goble, Amanda Baber, Pamela Llubran and Kelly Evans.

Notably missing from this group is Paul Jackson, our MD. Paul has committed to joining the run if we raise 50% of the target by 18th July. If that isn't motivation enough to donate, then take a moment to read Ben's story below:

Last year, Ben was referred to a Paediatrician due to his propensity for falling over and hitting his head. Little did we know that this would be a life changing appointment.

Ben has been diagnosed with Duchenne Muscular Dystrophy. Duchenne MD is one of the most common fatal genetic disorders to affect children (mostly boys) around the world. It is a devastating, progressive and currently incurable muscle-wasting disease. The avergae life expectancy for a child with DMD is currently early 20s.

This also means that Ben has never had the strength or balance to enable him to ride a bike, an experience every child should have. The only solution is to get him a customised trike.

We are going to run/walk/crawl 10k to raise the funds needed to Help get Ben on his Trike and more....

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Updates

3

  • Alex Clarke9 days ago
    Alex Clarke

    Alex Clarke

    9 days ago

    We are overjoyed to let you know that Ben has his trike and he loves it. We cannot put into words how grateful we are for all your amazing support. There were tears! Much love - Alex, Lisa and Ben

    Update from the Page owner

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  • Alex Clarke1 month ago
    Alex Clarke

    Alex Clarke

    1 month ago
    Update from the Page owner

    Share this update to help us raise more

  • Alex Clarke2 months ago
    Alex Clarke

    Alex Clarke

    2 months ago

    We are blown away by the support so far.... a massive thank you for all those that have contributed. So, Paul Jackson our MD has now signed up to run. Ben is getting really excited about getting a trike, which all of you are making possible.

    Share this update to help us raise more

2 months ago

Alex Clarke started crowdfunding

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Page last updated on: 8/6/2018 12:27 PM

Supporters

84

  • Conrad Olwagen

    Conrad Olwagen

    Jul 31, 2018

    Well done to Alex and the rest of the team that took part in the run. I hope you all had fun, albeit in that heat.

    £10.00

  • Clare Russell-Pavier

    Clare Russell-Pavier

    Jul 31, 2018

    What a wonderful cause. I've learnt a lot about MD over the past couple of years so totally understand how this can affect a family. Lots of love and happy memories to you all! Clare x

    £10.00

  • Natasha Draper West

    Natasha Draper West

    Jul 31, 2018

    Blessings always for you Ben! Lots of love Natasha and family!

    £20.00

  • Suzie Robinson

    Suzie Robinson

    Jul 31, 2018

    Well done everyone! Such a good result and an amazing cause =)

    £10.00

  • Anja Henschel-Idriss

    Anja Henschel-Idriss

    Jul 27, 2018

    Although I didn't run, just sweat thinking about it, this is a great cause to support. For Ben! X

    £20.00

  • Dori Szelecki

    Dori Szelecki

    Jul 26, 2018

    Well done dream team for the run and I hope to see Ben with the biggest smile ♥️ Hugs to Alex & the fam ♥️

    £10.00

  • Flaviana Sabau

    Flaviana Sabau

    Jul 26, 2018

    £20.00

Alex Clarke

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About the fundraiser
Alex Clarke

Alex Clarke

I am Ben's Dad. He is a fun loving and amazing boy who was recently diagnosed with Duchenne Muscular Dystrophy. All we want is to provide him with the best quality of life and amazing experiences.

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