We did it!
Alex Clarke raised £3,060 from 85 supporters
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Closed 09/10/2018
Weʼve raised £3,060 to Help Ben get on his Trike and more!!!
- Funded on Tuesday, 9th October 2018
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Story
On the 25th July a group from Portico will be taking on a 10km run in support of Ben Clarke. This group includes: Alex Clarke, Carly Jarvis, Modestas Povilitas, Victoria Jennings, Oliver Hiner, Ewa Dabydoyal, Amy Gentles-Mickie, Matt Urbaniak, Greg Bodnar, Cat Goble, Amanda Baber, Pamela Llubran and Kelly Evans.
Notably missing from this group is Paul Jackson, our MD. Paul has committed to joining the run if we raise 50% of the target by 18th July. If that isn't motivation enough to donate, then take a moment to read Ben's story below:
Last year, Ben was referred to a Paediatrician due to his propensity for falling over and hitting his head. Little did we know that this would be a life changing appointment.
Ben has been diagnosed with Duchenne Muscular Dystrophy. Duchenne MD is one of the most common fatal genetic disorders to affect children (mostly boys) around the world. It is a devastating, progressive and currently incurable muscle-wasting disease. The avergae life expectancy for a child with DMD is currently early 20s.
This also means that Ben has never had the strength or balance to enable him to ride a bike, an experience every child should have. The only solution is to get him a customised trike.
We are going to run/walk/crawl 10k to raise the funds needed to Help get Ben on his Trike and more....
Updates
4
- 6 years ago
Alex Clarke
6 years agoShare this update to help us raise more
- 6 years ago
Alex Clarke
6 years agoWe are overjoyed to let you know that Ben has his trike and he loves it. We cannot put into words how grateful we are for all your amazing support. There were tears! Much love - Alex, Lisa and Ben
Share this update to help us raise more
- 6 years ago
Alex Clarke
6 years agoShare this update to help us raise more
Alex Clarke started crowdfunding
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Supporters
85
Roxana Puscasu
Aug 31, 2018
Well done everyone!!! I am so happy for Ben that he can now enjoy his trike ! All the best! X
£10.00
Conrad Olwagen
Jul 31, 2018
Well done to Alex and the rest of the team that took part in the run. I hope you all had fun, albeit in that heat.
£10.00
Clare Russell-Pavier
Jul 31, 2018
What a wonderful cause. I've learnt a lot about MD over the past couple of years so totally understand how this can affect a family. Lots of love and happy memories to you all! Clare x
£10.00
Natasha Draper West
Jul 31, 2018
Blessings always for you Ben! Lots of love Natasha and family!
£20.00
Suzie Robinson
Jul 31, 2018
Well done everyone! Such a good result and an amazing cause =)
£10.00
Anja Henschel-Idriss
Jul 27, 2018
Although I didn't run, just sweat thinking about it, this is a great cause to support. For Ben! X
£20.00
Dori Szelecki
Jul 26, 2018
Well done dream team for the run and I hope to see Ben with the biggest smile ♥️ Hugs to Alex & the fam ♥️
£10.00
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About CrowdfundingAbout the fundraiser
Alex Clarke
I am Ben's Dad. He is a fun loving and amazing boy who was recently diagnosed with Duchenne Muscular Dystrophy. All we want is to provide him with the best quality of life and amazing experiences.