I am a mother of three girls and one of them, the oldest, my Laura, is turning 6 this November.

About 5000 miles away in the east, there is another mum, Benedetta, and her little daughter Sofia, who is also 6 years old, just like mine..but not quite. Benedetta and her family are fighting every day, every hour, every minute against a horrible monster, a beast that is eating Sofia's life and that needs to be destroyed as soon as possible!

Sofia is a beautiful, clever and full of life little girl who, at the age of two, was diagnosed with a terrible Syndrome, the Rett Syndrome, that has trapped her into a body not willing to do what she wants to do! She can't talk, run, climb a step or use her hands purposefully, she has problem sleeping, eating and even breathing sometimes, but she keeps fighting, she still tries to be the little girl she is supposed to be.

The Rett Syndrome is a genetic disorder of the nervous system that causes regression (loss) of language and motor skills. Unfortunately at the moment there is no cure, in many cases the physical symptoms can be alleviated by occupational and physical therapies.

Following Sofia's diagnosis, their parents felt the compelling need of helping her and all the other children affected by Rett Syndrome, fighting the Monster and maybe one day destroying it for good. They decided to create 'One day Sofia', a no-profit association with the purpose of raising money for the Rett Syndrome medical research and of supporting all the people affected by this syndrome.