Your friends are fundraising. Don't miss out, opt in.

0

%

£160raised of £2,000 target by 4 supporters

Weʼre raising £2,000 to Grayson's Ladder - Grayson is the son of a US colleague that has Alexanders Disease - A very rare & incurable disease, let's change that!

Cheltenham, UK

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Grayson Ledbetter is a five-year-old living with Alexander Disease, and Grayson’s Ladder exists to ensure kids with this disease and other forms of Leukodystrophy live long, fulfilling lives.

Alexander Disease is a rare, regressive brain disease affecting fewer than 100 people across the world. But the rarity doesn’t negate the urgency; because it’s such a rare disease, there is no “norm” and, in the past, those with the disease were simply told there was no hope.

But there is hope -- hope for a cure, and the resolve to see it through. Doctors at leading hospitals in the U.S. wake up thinking about this disease, and are developing a drug that may serve as a treatment. Families across the U.S. are united to fund research and development. And people across the country are rallying to build community, to take giant steps toward progress and to battle the odds for people whose lives hang in the balance.

Grayson’s Ladder strives to lead this work through prayer, community, research and supporting families affected by the disease. But we can’t do it alone. Our hope is that people like you will join us on our climb to a cure.

As this is a US charity, I'm crowdfunding my friends, colleagues and associates to help with this cause, please pledge here and I'll forward all the money raised to Grayson's parents, Josh and Laura, and their charity or you can donate directly at the following - https://graysonsladder.org/donate

I am running the Cheltenham 1/2 Marathon on September 30th and will be actively pushing the charity and event.

Share this story

Updates

0

Jonathan Laughland

Updates appear here

    3 months ago

    Jonathan Laughland started crowdfunding

    Leave a message of support

    Page last updated on: 6/5/2018 11:29 AM

    Supporters

    4

    • Matthew Potts

      Matthew Potts

      Jun 5, 2018

      A great cause!

      £100.00

    • Karl Lewis

      Karl Lewis

      Jun 5, 2018

      Let’s find a cure!

      £30.00

    • Anonymous

      Anonymous

      Jun 5, 2018

      If you are supporting this Jon, it’s good enough for me. Mark M.

    • Hilda Klemovitch

      Hilda Klemovitch

      Jun 4, 2018

      Go Jonathan....

      £20.00

    Jonathan Laughland

    Become a supporter

    Help Jonathan Laughland raise more

    About the fundraiser
    Jonathan Laughland

    Jonathan Laughland

    Cheltenham, UK

    I work for Skuid, I run 1/2 marathons for charities I passionately believe in and have a direct connection with. Love life, living and my family.

    Report this Page

    * JustGiving crowdfunders pay a small fee for our service. Find out how much it is and what we do for it.

    Donate