Weʼve raised £30 to Blake Bedford is 20 and has cystic fibrosis. At 18 NHS funding stops for some of the treatments he needs so we are raising money to help.
- Health and medical
- Time left
- Funded on Tuesday, 3rd October 2017
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Blake Bedford is 20 and he has had to live with the terrible illness which is cystic fibrosis.
Cystic fibrosis affects the respiratory and gastroenterology systems of the body and the long term affects are many and profound. Due to the excessive thick mucus produced both bowel and lungs need to be treated, mucus blocks the airways and causes extensive damage due to multiple infections. This is combated by regular Physiotherapy up to four times a day and nebulised treatment which consists of a cocktail of daily drugs and intravenous antibiotics.
Blake's treatment regime is daily! This has increased over the years with more medications being added in to help him live a normal life. Unfortunately infections do occur and this usually requires oral or intravenous antibiotics which normally involves a stay in hospital.
I met Blake and his family when he was 4 years old, his parents were encouraged to keep him as active as possible so his mum enrolled him into swimming lessons. Blake's commitment to his lessons was immense, all exercise was hard for him due to his condition but he didn't let that stop him and he successfully learnt to swim and swim well.
As Blake grew up I was getting more aware of how hard is was for him and his family to be living with this illness. Blake was spending more and more time in and out of hospital and as you can imagine this was a strain and very stressful for the whole family.
I have worked with a lot of children with varying conditions any the one thing that constantly amazes me with the Bedford's is their commitment to try and lead a normal life. Blake and his family never moan about their situation they just simply get on with it. After many conversations with Maxine ( Blake's mum ) I was amazed to find out that when Blake turned 18 the NHS stop funding simple treatments that Blake needs to help maintain his lifestyle.
So in 2010 I took part in a British long distance swimming event to raise funds to help Blake and his family cope. Those funds have helped the Bedford's over the last three years but they've nearly run out which means it time to raise more!
Please help or join us in the fund raising activities that we will be doing this year. All support in any which way you can will be awesome and much appreciated.
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Hannah Davies started crowdfunding
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Sep 12, 2017
Go Lee & co. Great support to Maxine & Blake.
Sep 4, 2017
Goog luck to you all. Its challenging. You will be so proud with your achievement. Such a worthy cause too xx
Sep 4, 2017
Good luck. Remember running Seven Sisters in the 90's. Enjoy!!!
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About the fundraiser
We are joining a group of amazing people on the 28th October to walk the massive 26.2 mile of the beach head marathon to raise much needed funds for the treatments Blake needs for his cystic fibrosis. Any donation no matter how much will make a huge difference.
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