My name is Hannah Amelia Evans I'm 27 and from South Wales. In desperate need of life saving treatment in the USA, without this treatment I'll die. My conditions have deteriorated a lot over recent years and this treatment is only available in the USA. The chronic systemic condition that needs treating is called mast cell activation disorder (MCAD). UK specialists, consultants and Doctors have all said I desperately need this treatment as I am so antibiotic resistant now I'm in constant danger of picking up an infection which causes my body to start shutting down, quickly becoming life threatening which is terrifying for me and my family.

The conditions I have are....

1. Ehlers Danlos Syndrome EDS, which is a very complex connective tissue disorder which effects sufferers differently.

2. POTS, postural orthostatic tachychardic syndrome, which for me is chronic and systemic. My bodies autonomic system doesn't work properly, so everything my body is meant to do automatically such as control heart rate, blood pressure, body temperature, digestion etc, doesn't work. This wreaks havoc on my body and my ability to live day to day without medical intervention.

3. Mast cell activation disorder also known as MCAD is a systemic disease where my mast cells are aggressive and hypersensitive. Also the walls of my white blood cell break down very easily causing my body to attack itself and means my immune system doesn't work at all. For me it also causes very high blood histamine levels, which means I'm constantly at risk of life threatening allergic reactions to everything and anything. Also my mast cells attack our immune system which results in me having Multiple life threatening problems as my body can't fight off even the smallest virus or infection, so I become critically ill very quickly. This condition has attacked my immune system so badly I have to wear a mask in public. I am now resistant to every antibiotics except two. This is why the treatment in the USA is my last chance.

I have to take over 100 oral meds and 16 IV injections via my Hickman line 4 times a day. My Hickman line is a visible line that goes straight into the centre of my chest, that then goes straight into my heart.

Due to the complexity of how these conditions effect me which is very rare theres NO funding on the NHS in ANY UK hospital. Because of this I've had to set up this page to fundraise for life saving treatment, as I already have to pay for some of my daily medications and 3 monthly appointments to see private specialist consultants in London.

My parents have payed £80,000 already on my medical treatments, appointments and medications over the last 5 years, when I become immobile and get seriously unwell in hospital.

I spend up to 60% of the year on IV treatments at home or in hospital. I've exhausted every other option and written to government members and my NHS trust. I'm in desperate need of this treatment in down town New York hospital, if I don't get this treatment my life will be cut considerably shorter and I will die.

Living not knowing if you will be able to afford your life save treatments is terrifying! Please help me get this life saving treatment I desperately need, please donating and sharing my page.

I now wonder why isn't my life as important as anyone else? The NHS has a 70th anniversary this year, why won't they allow me to live 70 years? Why is MY LIFE expendable.

Thank you for you kindness and generosity it means a lot, thank you. If you'd like to follow my complete journey please follow my facebook page @medicsmylineandme.

some might have noticed the increase in the amount of money we need. This is because Hannah has been turned down by the welsh health board for funding for a new chemo type drug she'll need for 6 months after the USA treatment. Why? Because she will be the first in Wales to have it! This chemo type treatment will cost an extra £24,000 on top of the £13,500 we've already raised. Please continune to support Hannahs justgiving page. There ia weekly updates on her facebook page @medicsmylineandme.

Thank you x