Weʼve raised £1,763 to help raise awareness of CMN All donations will be paid direct to the Charity's Bank Account
- Armadale, United Kingdom
- Health and medical
- Time left
- Funded on Tuesday, 21st February 2017
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Hannah Bostock lived in Armadale, West Lothian who was born with multiple extensive CMN (Congenital Melanocytic Naevus) covering approx 70-80% of her body with about 100-200 other small naevi (satellites). This is not a rare occurrence in newborns as “birthmarks” are extremely common. However, the size and extent of this disfiguring condition is. An extremely rare complication of CMN is malignancy in the brain and spine, known as “neurocutanous melanosis” which occurs in less than 1% of those with “giant” CMN with additional satellites.
Tragically and devastatingly Hannah’s health deteriorated in the summer of 2010. It became extremely apparent that the medical profession in Scotland new little or nothing about the condition or the neurological complications which could manifest. Hannah had numerous scans, assessments by various professionals and an operation to remove a tumour from her brain. Hannah had developed Neurocutenous Melanosis and the treatment could only prolong her life as there is no cure. Hannah fell asleep in her mother’s arms in April 2011, aged ten.
Hannah loved to sing and dance and was at her happiest dressing up and performing to her favourite pop group’s music. She attended drama classes in Bathgate. She was an effervescent, sparkling child who loved to write stories. During Hannah’s short life she was put forward to the Make-A-Wish-Foundation, as it was her wish to write and publish a book. The foundation worked with Egmont publishers to produce Hannah’s story into a fully illustrated children’s book - “Scary But Happy”. There have been two print runs and now the charity have arranged another print run of the book to celebrate Hannah’s life and mark a new campaign to raise funds for research, education and training for medical professionals and to support families affected by CMN.
Hannah Bostock CMN Charity2 months ago
Hannah Bostock CMN Charity
As you can see from our page we have raised well over our initial target of £1,000 (we have now increased our target to £2,000). We would like to thank all you wonderful donators who have helped to keep the memory of Hannah alive, as well as making fabulous donations to go towards helping researching Hannah's very rare condition. Thank you from the Trustees of the charity.
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Catherine May Berry
Feb 20, 2017
I have very fond memories of Hannah during her early years. Such a vibrant & intelligent little girl and a very tragic loss to the family. Good luck with your upcoming fund raiser at Howden Park.
Feb 2, 2017
Dec 30, 2016
Donated on behalf of Jill McPherson. My heart goes out to you and I wish the charity all the best in finding out more about the cause and possible cure.
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