Weʼre raising £1,000 to help raise awareness of CMN All donations will be paid direct to the Charity's Bank Account
- Armadale, United Kingdom
- Health and medical
- Time left
- 81 days to go
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Hannah Bostock lived in Armadale, West Lothian who was born with multiple extensive CMN (Congenital Melanocytic Naevus) covering approx 70-80% of her body with about 100-200 other small naevi (satellites). This is not a rare occurrence in newborns as “birthmarks” are extremely common. However, the size and extent of this disfiguring condition is. An extremely rare complication of CMN is malignancy in the brain and spine, known as “neurocutanous melanosis” which occurs in less than 1% of those with “giant” CMN with additional satellites.
Tragically and devastatingly Hannah’s health deteriorated in the summer of 2010. It became extremely apparent that the medical profession in Scotland new little or nothing about the condition or the neurological complications which could manifest. Hannah had numerous scans, assessments by various professionals and an operation to remove a tumour from her brain. Hannah had developed Neurocutenous Melanosis and the treatment could only prolong her life as there is no cure. Hannah fell asleep in her mother’s arms in April 2011, aged ten.
Hannah loved to sing and dance and was at her happiest dressing up and performing to her favourite pop group’s music. She attended drama classes in Bathgate. She was an effervescent, sparkling child who loved to write stories. During Hannah’s short life she was put forward to the Make-A-Wish-Foundation, as it was her wish to write and publish a book. The foundation worked with Egmont publishers to produce Hannah’s story into a fully illustrated children’s book - “Scary But Happy”. There have been two print runs and now the charity have arranged another print run of the book to celebrate Hannah’s life and mark a new campaign to raise funds for research, education and training for medical professionals and to support families affected by CMN.
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Hannah Bostock CMN Charity started crowdfunding
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Nov 26, 2016
Sending Christmas love and Festive wishes to my friends and family won't be doing Cards instead this supporting Hannah Bostock CMN Charity
Nov 25, 2016
Great cause, c'mon folks ...dig deep, lets get £1000 raised asap ....Remembering Hannah
Nov 25, 2016
With all my love, I hope you create the awareness needed Diane ❤️ Lian McAdam
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