86%
£1,733raised of £2,000 target by 30 supporters

Weʼre raising £2,000 to help raise awareness of CMN All donations will be paid direct to the Charity's Bank Account

Location
Armadale, United Kingdom
Time left
36 days to go

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Story

Hannah Bostock lived in Armadale, West Lothian who was born with multiple extensive CMN (Congenital Melanocytic Naevus) covering approx 70-80% of her body with about 100-200 other small naevi (satellites). This is not a rare occurrence in newborns as “birthmarks” are extremely common. However, the size and extent of this disfiguring condition is. An extremely rare complication of CMN is malignancy in the brain and spine, known as “neurocutanous melanosis” which occurs in less than 1% of those with “giant” CMN with additional satellites.

Tragically and devastatingly Hannah’s health deteriorated in the summer of 2010. It became extremely apparent that the medical profession in Scotland new little or nothing about the condition or the neurological complications which could manifest. Hannah had numerous scans, assessments by various professionals and an operation to remove a tumour from her brain. Hannah had developed Neurocutenous Melanosis and the treatment could only prolong her life as there is no cure. Hannah fell asleep in her mother’s arms in April 2011, aged ten.

Hannah loved to sing and dance and was at her happiest dressing up and performing to her favourite pop group’s music. She attended drama classes in Bathgate. She was an effervescent, sparkling child who loved to write stories. During Hannah’s short life she was put forward to the Make-A-Wish-Foundation, as it was her wish to write and publish a book. The foundation worked with Egmont publishers to produce Hannah’s story into a fully illustrated children’s book - “Scary But Happy”. There have been two print runs and now the charity have arranged another print run of the book to celebrate Hannah’s life and mark a new campaign to raise funds for research, education and training for medical professionals and to support families affected by CMN.

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Updates

1

  • Hannah Bostock CMN Charity

    Hannah Bostock CMN Charity

    7 days ago

    Hannah Bostock CMN Charity

    As you can see from our page we have raised well over our initial target of £1,000 (we have now increased our target to £2,000). We would like to thank all you wonderful donators who have helped to keep the memory of Hannah alive, as well as making fabulous donations to go towards helping researching Hannah's very rare condition. Thank you from the Trustees of the charity.

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3 months ago

Hannah Bostock CMN Charity started crowdfunding

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Supporters

30

  • Jennifer Sanderson

    Jennifer Sanderson

    Dec 30, 2016

    Donated on behalf of Jill McPherson. My heart goes out to you and I wish the charity all the best in finding out more about the cause and possible cure.

    £10.00

  • Alexis Ovenstone

    Alexis Ovenstone

    Dec 28, 2016

    Follow-on funds for my forgotten money at Jill's prosecco night 🍾! X

    £10.00

  • Jill Shepherd

    Jill Shepherd

    Dec 28, 2016

    Sorry I couldn't make the Prosecco night Jill.. great cause. Xx

Hannah Bostock CMN Charity

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Hannah Bostock CMN Charity

Hannah Bostock CMN Charity

Armadale, United Kingdom

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