Harper-May has been diagnosed with digeorges and has multiple disabilities in her 7 months of life 5.5 months were in hospital and there will be many more visits and surgeries to come.

She needs a lot of special things and also needs 24 hour care, she needs special wedges, suction, feeding equipment plus much more. This is where we come in. We are fundraising to get Harper-May a new cot bed which will help her tremendously.

This is heart breaking as a family, its a life long condition that can't be cured because it's a missing chromosome, (22q11 deletion) they family have the continued worry that her equipment needs are refused by the nhs or the timescale for referals for such equipment is ridiculously long. Without these Harper-may's life would be non existent . She is ng feed and is on 24 medications a day all through tube, she's awaiting open heart surgery, peg surgery possible throat surgery and many others throughout her life.
It has been a constant fight for Harper-May to receive the treatment she needs through specialist hospitals as their local hospital can't care for her everything they do they have to do themselves for her. It's so unfair she has a right to life and treatment like everyone else. It will cost thousands but a start will be a new cot bed. They have purchased small items but have now had to give up work to care for her is restricting what they can buy. She's 7 months old. And like many digeorges children (1in 4000) why should they be treated any different because they have special needs.