Harry suffers from a rare genetic disease called FOXG1.

This disease means that Harry is unable to walk, talk and sit up. He has very poor eyesight, regularly suffers from seizures, is unable to feed properly, he has issues with sleeping, involuntary movements (or 'jerks'), excessive crying and he is unable to communicate.

Harry's parents only recently got a diagnosis for him, and he is only the 212th case in the world to have this disease, which means there isn't much information or awareness.

I wanted to start this crowdfunding to support the family and their journey as Harry turns from a baby into a boy. He is three in a few months and is already very big for his age.

We would like the funds to buy the following items:
A specialist car seat
A sleep safe bed
An Interactive floor sensory system

These are items they 'need', and hopefully the council will support them in making bigger changes to the house to help get Harry around.

I'd also like to see if there is any extra funds to buy things that Harry can enjoy too, such as special sensory toys and lights to go in his room.

So in light of all this, I'm asking if you can spare any money, small or large, to help us buy these items for our little Foxy boy.

Its unfortunate that items for the disabled are very expensive, so I suggested we start this campaign to not only raise money, but also awareness of this rare disease. So if anybody wanted to support Harry or his disease (FOXG1) by gaining sponsors for any sports activities you may take part in, then we would also really appreciate this.

Here is the link to a site that will tell you more about this disease: https://foxg1.org/about-foxg1/

Thank you so much for visiting the page and reading Harry's story.

You can see regular updates on how Harry is doing on his Facebook page here:
https://www.facebook.com/Harry-Chatterton