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Kim Burrows raised £5,974.8 from 70 supporters.

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Closed 06/12/2017

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£5,974raised of £10,000 target by 70 supporters

    Weʼve raised £5,974 to fund equipment for Harry who is living with a rare genetic disease

    Leicester, United Kingdom
    Funded on Wednesday, 6th December 2017

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    The page owner is responsible for the distribution of funds raised.

    Story

    Harry suffers from a rare genetic disease called FOXG1.

    This disease means that Harry is unable to walk, talk and sit up. He has very poor eyesight, regularly suffers from seizures, is unable to feed properly, he has issues with sleeping, involuntary movements (or 'jerks'), excessive crying and he is unable to communicate.

    Harry's parents only recently got a diagnosis for him, and he is only the 212th case in the world to have this disease, which means there isn't much information or awareness.

    I wanted to start this crowdfunding to support the family and their journey as Harry turns from a baby into a boy. He is three in a few months and is already very big for his age.

    We would like the funds to buy the following items:
    A specialist car seat
    A sleep safe bed
    An Interactive floor sensory system

    These are items they 'need', and hopefully the council will support them in making bigger changes to the house to help get Harry around.

    I'd also like to see if there is any extra funds to buy things that Harry can enjoy too, such as special sensory toys and lights to go in his room.

    So in light of all this, I'm asking if you can spare any money, small or large, to help us buy these items for our little Foxy boy.

    Its unfortunate that items for the disabled are very expensive, so I suggested we start this campaign to not only raise money, but also awareness of this rare disease. So if anybody wanted to support Harry or his disease (FOXG1) by gaining sponsors for any sports activities you may take part in, then we would also really appreciate this.

    Here is the link to a site that will tell you more about this disease: https://foxg1.org/about-foxg1/

    Thank you so much for visiting the page and reading Harry's story.

    You can see regular updates on how Harry is doing on his Facebook page here:
    https://www.facebook.com/Harry-Chatterton

    Updates

    2

    • Kim Burrows7 months ago
      Kim Burrows

      Kim Burrows

      7 months ago
      Update from the Page owner

      You guys are amazing! We have raised just short of £6,000! This is a huge amount and enough to get Harry so many Christmas presents, that will make him happy and more comfortable around the house. Check out Harry's page for all of the updates on everything we use the money for. In the new year, we will be opening the page back up for any ongoing donations. Thank you Thank you Thank you xxxxxxxx

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    • Kim Burrows9 months ago
      Kim Burrows

      Kim Burrows

      9 months ago

      Harry's Mum, Dad and family would like to say a huge thank you to you all for everything you've done for this little guy! We're so close to the 50% mark, which is something we never expected. We now have enough money to get Harry a car seat, and we almost have enough to get him a new bed! Please keep sharing the page and spreading the word, we'd like to reach our target by Christmas, and we'd also like to raise more awareness around FOXG1. Thanks again everyone xx

      Share this update to help us raise more

    1 year ago

    Kim Burrows started crowdfunding

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    Page last updated on: 12/5/2017 11:38 AM

    Supporters

    70

    • Anonymous

      Anonymous

      Oct 15, 2017

      Love you Harry x

      £20.00

    • michelle rose

      michelle rose

      Oct 14, 2017

      Last sponsor money from Leics 10K - thanks Rachel Nicholson xx

      £25.00

    • Jane Vaughan

      Jane Vaughan

      Oct 9, 2017

      Chin up for Harry!

      £20.00

    • Emma Ford

      Emma Ford

      Oct 3, 2017

      Last bit of my sponsor money. #team bolt. Love to Harry and family xxx

      £55.00

    • Gemma Durrant

      Gemma Durrant

      Oct 3, 2017

      Finally rounded up the last few sponsors, sorry for the delay!Best of luck in reaching the total not far to go now.Cheers all :) xx

      £400.00

    • Jodie Spooner

      Jodie Spooner

      Sep 29, 2017

      My sponsor money from Harry's 10k! xxx

      £274.00

    • Donna Smith

      Donna Smith

      Sep 28, 2017

      My sponsor money from my 10k fun from Donna smith

      £100.00

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    About Crowdfunding
    About the fundraiser
    Kim Burrows

    Kim Burrows

    Leicester, United Kingdom

    Photographer living in between London and Leicester.

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