Weʼre raising £2,000 to launch Harry's HAT Charity. We have now smashed the target but you can still help by donating here.
- Bagshot, UK
- 17 days to go
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Just before Harry was born we heard the words nobody wants to hear…There is a problem with the baby and it's serious.
At 36 weeks, a routine scan revealed a huge arachnoid cyst in Harry’s head. At first, we were told the worst. Shortly after, it seemed like we had beaten the odds- the doctors said he was fine. Sadly, that was short-lived, and at 8 weeks Harry had a shunt (which goes into his brain and drains the excess fluid into his tummy) fitted in his head. Harry is now 1, and in that short time he has endured 4 brain surgeries, numerous hospital visits and rides in big blue flashing ambulances.
Since his diagnosis, we have spent a lot of time in hospital, often at specialist centres away from family, his beloved siblings and friends. We have had great care, but have quickly discovered that the NHS is broke! Harry has hydrocephalus as a result of his cyst and will need his shunt for life. Since we were hurled into this world, we have found that Shunts haven’t really developed since they were first invented 60 years ago. In addition, there seems to be very little research into arachnoid cysts (the cause of the hydrocephalus)- so we want to change this.
We have also come across lots of lovely medical staff who want training in the field of hydrocephalus, but as the NHS’s piggy bank is empty, they simply can’t. We want to help those who want to learn as there simply aren’t enough front-line staff who understand how to help Harry and children like him.
Finally, being Harry’s Mummy and Daddy is an honour. However, we can get a bit lonely and a bit scared sometimes. There are some great charities out there but none which focus purely on hydrocephalus. We want to meet and help others like us.
To do this, we need a bob or two. To set up Harry’s charity; 'Harry’s Hydrocephalus Awareness Trust', and to do it properly, will take resources which we don’t have. We want to develop a good interactive website to encourage people to invest. We want a logo and some branding so that funders know we are serious, and we need to make sure we get all the legal bits in place to ensure we are playing by the rules.
Therefore, if you can help get Harry’s Hydrocephalus Awareness Trust (Harry's Hat!) up and running and help us to help heads like Harry’s, we would be very grateful.
Caz & Matt- Harry’s Mummy & Daddy
Ps. If we exceed our target then the money will be kept until we are able to launch Harry's charity- it'll then go straight into the charity's funds.
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- 4 months ago
Caroline Thwaites4 months ago
Thank you so so much for your support. We've had meetings with hospitals to make sure we can provide the right training so they can learn more about arachnoid cysts and hydrocephalus. We've also meet other families in similar situations. We are now working on a fourm to bring everyone together. www.instagram.com/harrys_hat_charity Twitter: www.twitter.com/harryshat5 Blog: bit/ly.HarrysHatCharity Once again thank you for your support it means so much to us and will help us to help other children (and their families) like Harry.
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- 8 months ago
Caroline Thwaites8 months ago
Thank you so much to everyone who has supported us. We have made some great progress, so Thank You. Firstly, we have registered the charity with the charity commission . We have some amazing logos thanks to a lovely marketing company and we formed our Trustee team. There has been lots of press coverage which has helped . Here is a link to one piece. https://www.getsurrey.co.uk/news/surrey-news/meet-bagshot-couple-founding-charity-15432202 Please keep sharing as now the work really starts. We need to raise £100,000 in 2019!
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Caroline Thwaites started crowdfunding
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Mar 8, 2019
Mar 6, 2019
Keep going. Keep going as a family and keep being strong. xxx
Jan 19, 2019
Jan 11, 2019
As a grandmother of 20month Amara, who has cerebral palsy, I feel for you.
Lucy Martin (Music With Mummy)
Jan 6, 2019
From Santa's Hat to Harry's Hat! With love from me and all your Music with Mummy friends. x
Jan 4, 2019
Beautiful Harry 💙
Dec 28, 2018
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