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£438raised of £1,000 target by 34 supporters

Weʼre raising £1,000 to Help make our baby Ava’s funeral perfect and start a charity project in her memory called Ava’s Butterfly Baby Pathway.

Kingston upon Hull, United Kingdom
17 days to go

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On Wednesday 6th September 2017 at 14:00, whilst attending our babies 20 week anomaly scan at Hull Women & Children’s Hospital, we were given the earth shattering news that our unborn child has a fatal condition called Bilateral Renal Agenesis. This is where both kidneys have failed to form and in addition, they do not have a bladder. Because no renal system has developed, the amniotic fluid surrounding our baby has disappeared and will stop our babies lungs from developing and will cause physical deformity known as potters sequence/syndrome. This condition is fatal and will either lead to stillbirth or our baby will pass away shortly after birth. We attend bi-weekly hospital appointments to check if baby is still with us. We plan to donate any viable organs upon our babies death to hopefully save another family from a similar heartache. We are looking to start a charity project in her memory to help families like ours, who decide to carry to term, despite a fatal diagnosis. We hope to create precious and long lasting memories of their special angels and we plan to call it - Ava’s Butterfly Baby Pathway. The project will include giving these families a memories pack, including a journal to capture and treasure every precious moment shared with baby, a copy of the book A Gift Of Time, a storybook to read to your baby whilst you are carrying them, plus many more ways to capture every moment. In addition to this we would also like to fund 4D scans for the families and if needed help fund gender blood tests. Our mission is to raise awareness of fatal fetal conditions, such as Potters Sequence and improve the support given to familes who are grieving for their baby before and after birth. Many sources offer support to families whose baby has already passed away and not before. Please help us prepare for her arrival and to say goodbye in a way that mirrors just how special and loved she truly is to all our family and friends.

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  • Hayley Martin7 months ago
    Hayley Martin

    Hayley Martin

    7 months ago

    Sadly our daughter Ava-Joy Sarah Rosie Nicola Martin passed away on Monday 8th January 2018. Fly high our sweet butterfly.

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10 months ago

Hayley Martin started crowdfunding

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Page last updated on: 2/1/2018 12:06 PM



  • Jack Marriott

    Jack Marriott

    Feb 1, 2018

    you are a remarkable and brave coupleI hope this helpsall the best


  • Anonymous


    Jan 31, 2018

  • Sylvia Chambers

    Sylvia Chambers

    Jan 29, 2018

    Hope you reach your target


  • Anonymous


    Jan 27, 2018

  • Anonymous


    Jan 27, 2018

  • Marie Hind

    Marie Hind

    Jan 27, 2018

    You are the most bravest family going I hope Ava-joy gets the send off you all deserve 💔💔




    Jan 27, 2018

    Loving Thoughts


Hayley Martin

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About the fundraiser
Hayley Martin

Hayley Martin

Kingston upon Hull, United Kingdom

Our unborn baby Ava has a condition that is not compatible with life and will die shortly before or after birth. We are looking for help to make her funeral as special and perfect as she is to us and also, to start a charity project called Ava’s Butterfly Baby Pathway.

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