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Hayley Trimm raised £29,000.63 from 762 supporters

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Closed 09/05/2022

0%
£29,000
raised of £85,000 target by 762 supporters

    Iʼve raised £29,000 to Give Ryley a new kidney and help him fight against his rare genetic disease 🤞

    Funded on Monday, 9th May 2022

    Don't have time to donate right now?

    Story

    Please help us 🤞

    Ryley was diagnosed with a rare genetic diesease called Cystinosis when he was just 3 years old, for the past 6 years he has fought this disease with every ounce of strength but it’s now taking its toll on his little body.

    Cystinosis is a condition characterized by accumulation of the amino acid cystine in different tissues and organs of the body. It attacks many parts of his body and he is now in the postion where his kidneys have completely failed.

    In June 2020, Ryley started receiving dialysis due to his kidneys no longer functioning correctly. Ryley has now been on dialysis every day for the past 9 months and spends 18 hours a day hooked up to a dialysis machine.

    Ryley is unable to eat and has to be fed nutrients through a tube. Ryley has been placed on a fluid restriction and he is only allowed 900ml of fluids a day. Imagine being so thirsty and being told you can’t have a drink.

    These are only 3 small parts of the battles he faces daily. COVID-19 has impacted his treatment greatly, we are here in the hope to get him a kidney transplant through a private clinic 🤞 The NHS have been outstanding, he is on the waiting list along with so many other people. If a mircle happens and Ryley receives a transplant on the NHS then we will focus and fund his aftercare, once this has been funded any remaining money will be given to The Cystinosis Research Foundation.

    The task we have set here is huge we know, but we have to do all that we can to support him, he is only 9 years old. For the past 6 years Ryley has missed out on so many things that kids his age love to do and we are hoping & praying he doesn’t miss out on anymore.

    Please please please help if you are able, every penny counts and if you cant donate then please just share this page. 🤞This is our last option to save our boy 💙

    Updates

    6

    • Hayley Trimm3 years ago
      Hayley Trimm

      Hayley Trimm

      3 years ago

      UPDATE PART 2…. This means we are now searching far and wide for a match for Ryley. No amount of money could find us a kidney so we’re going to carry on raising funds for Ryley to make his quality of life more enjoyable during these horrific times and to help towards the cost of the lengthy hospital stays we often have to endure. We, as always, appreciate all donations no matter how big or small. Please keep sharing, thank you.

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    • Hayley Trimm3 years ago
      Hayley Trimm

      Hayley Trimm

      3 years ago

      UPDATE…. Things have changed slightly since starting the fundraiser. We had planned on Ryleys dad Chris to donate his kidney to Ryley but throughout the further tests they needed to ensure Chris’ kidney was fully functional we discovered that Chris himself has a health condition called IGA Nephropathy which means he may himself have kidney problems in the future. This was a huge shock to us all.

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    • Hayley Trimm3 years ago
      Hayley Trimm

      Hayley Trimm

      3 years ago

      25%!! We can’t thank you enough for all the support and lovely gestures from everyone!! 75% to go, sounds so far away but let’s stay positive and keep going for Ryley 💪 please please please share the link far and wide xxx

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    4 years ago

    Hayley Trimm started crowdfunding

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    Page last updated on: 4/13/2022 17.14

    Supporters

    762

    • Anonymous

      Anonymous

      Apr 13, 2022

      Sending best wishes to you all.

      £53.00

    • Anonymous

      Anonymous

      Apr 13, 2022

      £100.00

    • Anonymous

      Anonymous

      Feb 15, 2022

      £4.00

    • Kelly Garratt

      Kelly Garratt

      Feb 3, 2022

      Chocolate page xx

      £35.50

    • FUTheda

      FUTheda

      Jan 31, 2022

    • Anonymous

      Anonymous

      Jan 30, 2022

    • Anonymous

      Anonymous

      Jan 29, 2022

      £10.00

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    About the fundraiser
    Hayley Trimm

    Hayley Trimm

    This isn’t just me. This is my whole family, backing and supporting my sister, her husband, Chloe and most importantly Ryley. #Team #Betterdaysarecoming

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