Please help us 🤞

Ryley was diagnosed with a rare genetic diesease called Cystinosis when he was just 3 years old, for the past 6 years he has fought this disease with every ounce of strength but it’s now taking its toll on his little body.

Cystinosis is a condition characterized by accumulation of the amino acid cystine in different tissues and organs of the body. It attacks many parts of his body and he is now in the postion where his kidneys have completely failed.

In June 2020, Ryley started receiving dialysis due to his kidneys no longer functioning correctly. Ryley has now been on dialysis every day for the past 9 months and spends 18 hours a day hooked up to a dialysis machine.

Ryley is unable to eat and has to be fed nutrients through a tube. Ryley has been placed on a fluid restriction and he is only allowed 900ml of fluids a day. Imagine being so thirsty and being told you can’t have a drink.

These are only 3 small parts of the battles he faces daily. COVID-19 has impacted his treatment greatly, we are here in the hope to get him a kidney transplant through a private clinic 🤞 The NHS have been outstanding, he is on the waiting list along with so many other people. If a mircle happens and Ryley receives a transplant on the NHS then we will focus and fund his aftercare, once this has been funded any remaining money will be given to The Cystinosis Research Foundation.

The task we have set here is huge we know, but we have to do all that we can to support him, he is only 9 years old. For the past 6 years Ryley has missed out on so many things that kids his age love to do and we are hoping & praying he doesn’t miss out on anymore.

Please please please help if you are able, every penny counts and if you cant donate then please just share this page. 🤞This is our last option to save our boy 💙