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Heather Sheldon raised £285 from 13 supporters

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Closed 21/09/2018

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£285raised of £3,000 target by 13 supporters

    Weʼve raised £285 to buy an iPad for Myles to use in school and help towards costs to attend the 2019 DUP15q US conference (flight costs)

    Sheffield, United Kingdom
    Funded on Friday, 21st September 2018

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    Story

    GOING MILES FOR MYLES

    My son Myles (5) was diagnosed with Interstatial DUP15q (11.2-13.1) in May 2017 after querying an autism diagnosis he received in September 2016.

    Our world as a family has changed - even though we have in essence swapped labels, the theat of seizures is now very real for my little boy. I want to be knowledgeable.

    We are trying to desperately acquire knowledge of this condition and are heavily reliant upon the amazing charity Dup15q Alliance - an American charity that specialise in this chromosome condition. Where doctors and hospitals in this country are truely amazing, their knowledge is limited on this condition. I am greeted at appointments with information that has been printed off the DUP15q website - my main source of help and information.

    For the last year we have paid for private speech and language with the amazing help of my family. Without their help, I am sure Myles would not have done as well as he has. The NHS could not offer exclusive 1:1 help which is what Myles needs to help him with his severe speech delay. This help has made such a difference. We have also booked Myles on a 10 week Saturday ABA (applied behavioural analysis) school in Doncaster in October in the hope of helping Myles become more calm and compliant and extend his sentence structures.

    As a family we are seeking your help to raise not only awareness of this condition, but also gain knowledge on this condition by attending the US conference in July 2019. I am desperate to speak to other multi agency professionals across the pond, network with other families whose children have this condition in order to help and empower my son, thus extending his speech.

    Speech is something that we all take for granted, and with the right interventions and therapies, this could be a very real skill Myles could acquire.

    I am also seeking your help to raise monies for an ipad for Myles to use at school. A lot of speech apps are not android compatible. The ipad would be kept at school for Myles to use exclusively at school.

    Please help me, help him.

    Lets go 'MILES FOR MYLES'

    Thanking you in advance

    Heather xxx

    (Mother to Myles)

    Updates

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    Heather Sheldon

    Updates appear here

      1 year ago

      Heather Sheldon started crowdfunding

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      Page last updated on: 9/30/2017 4:49 PM

      Supporters

      13

      • Jennifer Matthews

        Jennifer Matthews

        Sep 30, 2017

        Keep going, your doing a fab job!! Love Jenny, dave and Joshua xx

        £20.00

      • Sarah Burley

        Sarah Burley

        Sep 30, 2017

        You're doing a great job. Xxx

        £20.00

      • Chris Chenery

        Chris Chenery

        Sep 28, 2017

        Great work with the fundraising! Thinking of you all.

        £30.00

      • Stephanie Potter

        Stephanie Potter

        Sep 23, 2017

        With love x

        £10.00

      • Daniel Facer

        Daniel Facer

        Sep 23, 2017

        Hope it is going well Heather

        £10.00

      • Ann Marie Edwards

        Ann Marie Edwards

        Sep 23, 2017

        £5.00

      • Paul Chenery

        Paul Chenery

        Sep 23, 2017

        Well done Heather and David! You are doing a great job. Good luck with this campaign. Lots of love from us both.

        £100.00

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      About Crowdfunding
      About the fundraiser
      Heather Sheldon

      Heather Sheldon

      Sheffield, United Kingdom

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