To get treatments in the USA to establish safe and risk free feeding into either his stomach or small bowel as he is currently being fed via his small bowel which in the passed has lead to him having septsis which resulted in a life threatening surgery and he is at frequent risk of this happening again due to the tube keep coming out which there are no further information left for us to explore in the UK.
Would really appropriate any donatetion big or small as really would like to seek further treatment in the US to give my son a better quality and long life