Weʼre raising £1,350 to Help my daughter with autism, seizures, sensory issues and severe anxiety. We need her assessed privately to help her educationally
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We are just a regular family with some extraordinary challenges. Two of our children are diagnosed with autisim and both of them have some very real and complex needs and struggles. For my 12 year old she struggles to go outside, she hasnt attended school in one year. She has seizures frequently and is so terrified of people that its debilitating. She is highly anxious and finds communicating a serious challenge. This means she may only be willing to use pen and paper.
She experiences her senses physically so most of the time she is chronically in pain
She does not leave the house without her hood up, glasses on, ear defenders and my arm to hold. Now ive told you how she experiences the world please let me tell you who she is.
She is smart beyond her years, sincerely thoughtful and kind. Everything she learns is self taught, the piano is her favourite thing. She would be a great player with trivial pursuit, i‘ve learnt alot from her. She is fantastic at art and in fact the cover picture was drawn by her.
She writes stories and poems about her struggles and is the most empathetic person i know. She is a fierce advocate of people being respected for their beliefs and their individual right to follow there dreams and passions. She does not discriminate regardless of who you are and shows utter compassion for her fellow travelers ( as she call them ) She is also polite, grateful and a tad direct.
As some people reading this might understand, services and support are hard to find and can be seriously lacking in areas around education and mental health support. What we are needing help with is to raise funds to have a private assessment done so we can find a way to broaden her world and help her educationally, to engage with a life outside her window. Please know this is a last resort for us, i would sell everything i own to be able to do this independantly. We however spend all we have finacially on supporting both daughters with autisim and complex needs trying to create an opportunity for them to succeed, while ensuring our other two children do not miss out.
If you read this story and move on please know im very grateful that you looked at it, if this starts a conversation then i will be proud.
If you are able to donate anything at all, even £1.00 i would be so very grateful and it would all go towards a private assessment for her to live a life in a way we all take for granted. My only wish is for her to experience a life she currently only sees from her window. Please know i do not mention them by name as they are very private and it was us as their parents who need help.
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Helen Bennett started crowdfunding