Weʼve raised £20 to Meg needs bowel surgery, she has been housebound 2+ years, type 1 diabetic, autistic, neuropathy and cataracts, can you help?
- Bath and North East Somerset
- Disability support
- Time left
- Funded on Saturday, 16th September 2017
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Meg ( my daughter) was diagnosed with Type 1 diabetes aged 11 after a sickness bug that nearly took her life, killing her pancreas, this was just a few days after her birthday and a few days before starting High school, she missed valuable bonding days with her peers as well as coming to terms with lifelong injecting.Meg never coped well at school especially being around people, she had always struggled in social situations, it got so bad she did not want to go to school because she stood out having to go to the nurse to inject or test her sugars, health and safety meant she was not allowed to carry her blood testing kit or insulin on her....she stopped going to school, was given 5 hours a week home tuition. To cut a long story short aged 13 she was diagnosed with Aspergers autism, the stress autism causes has a knock on effect on her sugars creating a high - low swing, in 2014 Meg developed gut issues, sight issues and loss of feeling in her feet, she was diagnosed with cataracts and retinopathy, she was given a basic NHS fixed lens in one eye so her sight is like an old ladies to get eyes as good as normal eyes you have to go private lenses are not available on the NHS , she had numerous laser surgeries in her right eye to try and stop damage spreading or blindness, she has been left with bright coloured light flashes and snow effect, the once happy girl good at art could no longer see well to do anything, she was diagnosed with neuropathy in her feet and started tests for a cause on her constant faecal incontinence, by 2016 she was totally housebound with incontinence, she was diagnosed with autonomic neuropathy she cannot feel her rectum or have any bowel control there is no cure, meds and diets have made no difference, her gastroenterologist would not support her getting a colostomy bag on the NHS and we are going through the formal complaints root, and the NHS wait for this is too long, but her colorectal consultant could do the surgery at The Spire Bristol in October for £6k, and she is booked in but they need the funds up front. Weve tried getting a loan but our status is not good enough anywhere we also pay for Megs blood reading Freestyle Libre sensor equipment not available on the NHS as her sight is too poor for the conventional finger prick blood testing this is £48 per fortnight, we also pay for her incontinent pads, gloves etc again not supported by the NHS ......so we turn to you!!!!.....please help Meg get a life away from constant bowel pain, the toilet and incontinence pads and gain some sight and dignity back.Meg is 24 and has not been able to go out for 2 years other than a supermarket before breakfast As as soon as she eats she suffers pain and constant incontinence, she cannot do this very often as her sugars drop to low without breakfast. If we could raise enough to get her bowels fixed that would be fantastic, if we could raise the whole £15k can give her better sight to do the things she loves again, photography, art, reading etc..... if by some miracle we go over with funds it will go to Diabetes Uk towards research into this disease with so many nasty complications you do not hear about and our favourite charity Animal Affairs in Bristol that support animals, Meg would be lost without her cats. The picture at the start of the page is Meg before bowel problems, the ones after are of her now, under weight in pain, poor vision and so unhappy. Thanks for listening.
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Helen Lewis started crowdfunding
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Aug 28, 2017
Bought from Helens Ebay selling page. Thanks Good luck
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Bath and North East Somerset
Meg might not be an endangered animal or cute kid needing funds but she's an amazing daughter who struggles daily in life. We already have to pay for Megs wonderful Freestyle Libre gadget blood sugar reading sensors at £48 per fortnight not available on the NHS so please help.
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