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£2,620raised of £50,000 target by 53 supporters

Weʼre raising £50,000 to both share, and improve our quality of life, by getting vital medical treatment and care in the UK and overseas.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Hello and welcome to our page!

Who are we?

We were introduced to one another through a mutual friend (bit of a guardian angel). She thought we would benefit from getting to know each other, because we share such similar symptoms of illness and weren't having much luck with conventional treatment. So we spoke and haven't stopped since.

"you may be surprised by who helps you when you're ill and how essential they are".

We instantly connected! It was so comforting to know that our silence and suffering felt the same, without even having to go into detail. We bring out the best in each other despite the pain and we agreed that our lives didn't have to end in a trip to Switzerland. We inspired each other and built up courage, to share our journey and make this page.

What's not quite right with us?

We suffer with complex medical conditions. Those that are chronic we just want to keep under control and those that are not we want to resolve.

Between us both we suffer with:

•Severe Nutcracker Syndrome

•Severe Median Arcuate Ligament Syndrome (MALS)

•Superior Mesenteric Artery Syndrome (SMA)

•May-Thurner Syndrome (MTS)

•Interstitial Cystitis Syndrome

•Chronic pain

•Lyme disease

•Esophageal dysmotility

•Dysautonomia

•Severe Gastroperisis

•Inflammatory Bowel Disease (IBD)

•Hypermobility Spectrum Disorder (HSD)

•Postural Orthostatic Tachycardia Syndrome (POTS)

The severity of these conditions has a huge impact on our health and wellbeing. Resulting in us having different medical needs, ranging from; wheelchair dependency, urination and defecation systems and bags to enteral feeding

Basically we can't pee, poo, eat! without difficulty and aid.

How fundraising will help us

All of this can change our lives can change! We can (fingers crossed) not just exist but live again!

Even though we are fundraising together, and we both want what it says on our cover photo 'to LIVE one day at a time'. Right now all we are doing is surviving and that's not the same. We want to use the funds raised solely for medical related purposes but in different ways...

JULIET says:

After waiting on extremely long lists and being lost in the NHS system, for so many years now, has caused a huge decline in my health. Therefore necessary medical services such as; private health care are needed much more urgently, so i can get the necessary means to function. I can also get ongoing care and management for Lyme disease and specialist hormone therapy, that is currently unavailable to me on the NHS. Funds raised will also go towards my monthly supply of aids that help me eat, toilet and sleep. Getting this will improve my health and enable me to have a better chance at having a better quality of life. One where i can make memories and have some happiness whilst i'm still alive .

MOHIBAH adds:

All i want to do now is to LIVE like nobody's watching with manageable pain. After so many years of anguish, extensive diagnoses, lack of answers, lack of treatment options, i know its time now to get expert care overseas. My current treatment has been unsuccessful like all the rest and if it continues this way i will watch more of my organs die. I need assistance and surgery that is not recognised here. By the very few that are familiar with it; they just aren't willing or do not have the support or facilities to deal with my so many difficult issues.

My goal now is to register myself as a patient in the USA (this is what's required) to get the medical attention, that i really need.

Because these conditions are rare, they need expert care.

So please help us both, out of this desolation and despair. To reach the professionals we need, to get the right vital treatment and care.

How much things cost (roughly per person):

•Doctor consultations UK: £250+ Overseas: £500+ •Testing & procedures: £1000- £4000+ •Additional treatment costs ; Intravenous therapies £299+ Hormone therapy £500+ •Overseas Surgery & Pre-Operative care (only): £45000+

What we are doing to fundraise

•Selling homemade JAM •Selling gift cards & Art •Bake sales •Wedding cake auctions •Donation jars •Forgoing birthday presents for donations instead •Completing challenging challenges

What you can do

Just give and donate however much you can afford to spare, or just remember us in your thoughts & prayers.

DONATE NOW! Show us you care !

Thankyou

For taking the time to read our really long story. Your support is super important and means so much to us. #Loveyouincasewedie

JAM

Juliet And Mohibah

Find & Follow us on:

•Instagram spreadsome_jam

•YouTube Juliet's channel

•Email spreadsomejamplease@gmail.com

•Buy Juliet's digital art HERE as another alternative to support us!

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Updates

9

  • Juliet & Mohibah4 months ago
    Juliet & Mohibah

    Juliet & Mohibah

    4 months ago

    SHARE SOME OF THAT GLITTER LOVE ❤️

    Update from the Page owner

    Share this update to help us raise more

  • Juliet & Mohibah4 months ago
    Juliet & Mohibah

    Juliet & Mohibah

    4 months ago

    WE LOVE YOU & THANKYOU FOR YOUR GENEROSITY & SUPPORT! - Show someone how much you love them by purchasing one of these cuties! They make the sweetest little presents; Suitable for VEGETARIANS & VEGANS. They make great gifts for grandma, wedding favours, birthday bags & breakfast! We can even create personalised orders just for you too! - Get in touch for more deets on Instagram or email, don't forget to share this with all your friends too! #spreadsomeglitterjam

    Update from the Page owner

    Share this update to help us raise more

  • Juliet & Mohibah4 months ago
    Juliet & Mohibah

    Juliet & Mohibah

    4 months ago

    Spread some glitter jam and make someone's day.. Breakfast or Tea Party! - We are selling homemade strawberry glitter jam. Complete with cute stickers & labels. The jars are reusable and all the money raised goes towards our fundraising campaign. - Prices start at £4 p&p charges vary, we also offer collection & delivery. Contact us via; Email: spreadsomejamplease@gmail.com. Instagram: spreadsome_jam. #spreadsomeglitterjam -Visit us at fundraising events (keep you posted). GET YOURS IN TIME FOR BREAKFAST, BUY NOW!

    Update from the Page owner

    Share this update to help us raise more

8 months ago

Juliet & Mohibah started crowdfunding

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Page last updated on: 12/14/2018 17.42

Supporters

53

  • Naz Jem Hawwa

    Naz Jem Hawwa

    Dec 14, 2018

    To Mohibah & Juliet, im sorry this is late i have been meaning to this for ages. Keep doing what ur doing, two strong beautiful girls. Lots of love Naz, Jem & Hawwa xXx

    £100.00

  • Pete Linforth

    Pete Linforth

    Sep 24, 2018

    You're doing a great thing! Happy to support...

    £5.00

  • Nadya Rehman

    Nadya Rehman

    Sep 19, 2018

    £5.00

  • JustGiving Research

    JustGiving Research

    Sep 14, 2018

    Thanks for taking part in our research session, your input is much appreciated.

    £50.00

  • hirm siddique

    hirm siddique

    Sep 10, 2018

    Mohibah, I wish you all the best sweetheart. You are such a strong and beautiful women with so much love to give. I'm keeping you in my duas xxx

  • Anonymous

    Anonymous

    Sep 3, 2018

    From an old friend that loves u mohibah xxxx

    £15.00

  • Corinne

    Corinne

    Aug 5, 2018

    Wow. Best of the luck to the both of you. X

    £5.00

Juliet & Mohibah

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About the fundraiser
Juliet & Mohibah

Juliet & Mohibah

London, UK

JULIET AND MOHIBAH (JAM) TWO SICK SISTERS! Raising money to stabilise our current state of ill health & to obtain; vital medical assistance/treatment for a better quality of life.

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