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£10,211raised of £10,000 target by 289 supporters

Weʼre raising £10,000 to Help Teagan get medical treatment abroad

Canterbury, UK

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Story

Teagan is 9 years old and suffers from a rare genetic condition called Idic15. Epilepsy can come as part of this condition. Unfortunately Teagan has a very severe case of epilepsy called Lennox Gastaut Syndrom. Teagan can have up to as many as 300 seizures a day. These present in all different severity and types of seizures. We have tried multiple epilepsy medications over the years and even had a VNS fitted two years ago with unfortunately no success.

As I'm sure many of you are aware we have been fighting for Teagan to be prescribed medical cannabis to hopefully help with her seizures. We are still waiting for guidelines to be released but am unsure of how long this will take.

Taking everything into consideration, we have decided that we need to take the huge step of taking Teagan abroad to trial medical cannabis. If this is successful we will have a much stronger case to present back in England to prove it helps her.

Unfortunately this will not be quick or easy to do. We will need to spend at least 6 weeks to ensure the medication has had a chance to work and this will incur huge financial costs. We are asking if you could help support us in making our daughters life better and hopefully seizure free.

Thank you for taking the time to read this. If you wish to keep up to date on Teagan's story, please follow her on Facebook at helpforteagan ❤

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Updates

2

  • Emma Appleby1 month ago
    Emma Appleby

    Emma Appleby

    1 month ago
    Update from the Page owner

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  • Emma Appleby1 month ago
    Emma Appleby

    Emma Appleby

    1 month ago

    Due to the continued situation with Teagan's health and the lack of progress made in stopping the seizures it has confirmed our commitment to take her to Holland for treatment. Whereas our initial option included a subsidised treatment plan, Holland must be totally self funded at an estimated cost of over £10,000. Our current efforts have already covered a majority of this, however we will continue to fundraise to achieve this and give Teagan the best chance and treatment in Holland. We thank you for your continued support.

    Share this update to help us raise more

2 months ago

Emma Appleby started crowdfunding

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Page last updated on: 11/11/2018 5:43 PM

Supporters

289

  • Duncan Miles

    Duncan Miles

    Nov 11, 2018

    Good luck with getting the help you need.

    £20.00

  • Mike Mahoney

    Mike Mahoney

    Nov 9, 2018

    Praying this will bring some comfort.

    £50.00

  • Carina Storkey

    Carina Storkey

    Nov 4, 2018

    Sending all our love and hope for Teagan. Thinking of you xxxx

    £50.00

  • Daniel Croft

    Daniel Croft

    Nov 4, 2018

    Sending peace, love and positivity X

    £596.00

  • Kieran Lovell

    Kieran Lovell

    Nov 4, 2018

    Best of luck such a brave girl!

    £10.00

  • Jackie Taylor

    Jackie Taylor

    Nov 3, 2018

    Good luck getting the treatment your little girl needs, x

    £10.00

  • Emily Wilkins

    Emily Wilkins

    Nov 3, 2018

    Sending your sweet girl healing love and surrounding your family with ease & peace. I have a 9 yr old daughter with a rare genetic disorder and I hope our girls get to meet some day. ❤️

    £30.00

Emma Appleby

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About the fundraiser
Emma Appleby

Emma Appleby

Canterbury, UK

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