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Emma Appleby

Emma Appleby is crowdfunding

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£12,537raised of £15,000 target by 376 supporters

Weʼre raising £15,000 to Help Teagan get medical treatment abroad

Canterbury, UK

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Story

Teagan is 9 years old and suffers from a rare genetic condition called Idic15. Epilepsy can come as part of this condition. Unfortunately Teagan has a very severe case of epilepsy called Lennox Gastaut Syndrom. Teagan can have up to as many as 300 seizures a day. These present in all different severity and types of seizures. We have tried multiple epilepsy medications over the years and even had a VNS fitted two years ago with unfortunately no success.

As I'm sure many of you are aware we have been fighting for Teagan to be prescribed medical cannabis to hopefully help with her seizures. We are still waiting for guidelines to be released but am unsure of how long this will take.

Taking everything into consideration, we have decided that we need to take the huge step of taking Teagan abroad to trial medical cannabis. If this is successful we will have a much stronger case to present back in England to prove it helps her.

Unfortunately this will not be quick or easy to do. We will need to spend at least 6 weeks to ensure the medication has had a chance to work and this will incur huge financial costs. We are asking if you could help support us in making our daughters life better and hopefully seizure free.

Thank you for taking the time to read this. If you wish to keep up to date on Teagan's story, please follow her on Facebook at helpforteagan ❤

UPDATE
Everything is booked for Holland....I think!
After the expense of getting out there, staying for a few days and the two different medications we need to get - it's eaten half of our budget!!!
We can't risk Teagan not having this medication available once she's on it and with the ongoing monthly cost for just one of the medications being just over £1500 (without taking travelling costs into consideration) we have decided to re-activate the fundraising page. Thank you to everyone who has supported us xx

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Updates

3

  • Emma Appleby4 months ago
    Emma Appleby

    Emma Appleby

    4 months ago

    Teagan has now been on the medication for just under 2 months and she is thriving!! Unfortunately we still have no NHS prescription so are being forced to go abroad again. We do have a private prescription but import costs change the cost of one 10ml bottle from £150 to £500 - this would equal £6000 for one months medication!! We have the support of an MP this time too. Tonia Antoniazzi has offered to come with me to Holland. We have asked the home office to provide us with a compassionate import licence so we are awaiting their decision.

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  • Emma Appleby1 year ago
    Emma Appleby

    Emma Appleby

    1 year ago
    Update from the Page owner

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  • Emma Appleby1 year ago
    Emma Appleby

    Emma Appleby

    1 year ago

    Due to the continued situation with Teagan's health and the lack of progress made in stopping the seizures it has confirmed our commitment to take her to Holland for treatment. Whereas our initial option included a subsidised treatment plan, Holland must be totally self funded at an estimated cost of over £10,000. Our current efforts have already covered a majority of this, however we will continue to fundraise to achieve this and give Teagan the best chance and treatment in Holland. We thank you for your continued support.

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1 year ago

Emma Appleby started crowdfunding

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Page last updated on: 9/13/2019 18.26

Supporters

376

  • Anonymous

    Anonymous

    Sep 13, 2019

    Listened to Radio 2 and hope you get all that you need to continue treatmentBest wishes

    £30.00

  • Anonymous

    Anonymous

    Sep 12, 2019

    Best Wishes

    £30.00

  • Mike

    Mike

    Sep 11, 2019

    Really hope you smash this target. You're doing an unbelievable job and treatment should be made available now not later.

    £10.00

  • Anonymous

    Anonymous

    Sep 11, 2019

    I heard your story on radio 2 today and it brought tears to my eyes. No one should have to be in the situation you and your daughter are. Good luck x

    £20.00

  • linda scantlin

    linda scantlin

    Sep 11, 2019

    I do hope you get medication sorted soon .You shouldn't have to be paying for something that so obviously works. x

    £40.00

  • Jay Floyd

    Jay Floyd

    Sep 11, 2019

    Hope the law will change soon - keep fighting and good luck.

    £20.00

  • Anonymous

    Anonymous

    Sep 11, 2019

    Hope this helps :)

Emma Appleby

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Emma Appleby

Emma Appleby

Canterbury, UK

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