Your friends are fundraising. Don't miss out, opt in.

Emma Appleby

Emma Appleby is crowdfunding

0

%

£10,854raised of £15,000 target by 312 supporters

Weʼre raising £15,000 to Help Teagan get medical treatment abroad

Canterbury, UK

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Teagan is 9 years old and suffers from a rare genetic condition called Idic15. Epilepsy can come as part of this condition. Unfortunately Teagan has a very severe case of epilepsy called Lennox Gastaut Syndrom. Teagan can have up to as many as 300 seizures a day. These present in all different severity and types of seizures. We have tried multiple epilepsy medications over the years and even had a VNS fitted two years ago with unfortunately no success.

As I'm sure many of you are aware we have been fighting for Teagan to be prescribed medical cannabis to hopefully help with her seizures. We are still waiting for guidelines to be released but am unsure of how long this will take.

Taking everything into consideration, we have decided that we need to take the huge step of taking Teagan abroad to trial medical cannabis. If this is successful we will have a much stronger case to present back in England to prove it helps her.

Unfortunately this will not be quick or easy to do. We will need to spend at least 6 weeks to ensure the medication has had a chance to work and this will incur huge financial costs. We are asking if you could help support us in making our daughters life better and hopefully seizure free.

Thank you for taking the time to read this. If you wish to keep up to date on Teagan's story, please follow her on Facebook at helpforteagan ❤

UPDATE
Everything is booked for Holland....I think!
After the expense of getting out there, staying for a few days and the two different medications we need to get - it's eaten half of our budget!!!
We can't risk Teagan not having this medication available once she's on it and with the ongoing monthly cost for just one of the medications being just over £1500 (without taking travelling costs into consideration) we have decided to re-activate the fundraising page. Thank you to everyone who has supported us xx

Share this story

Updates

2

  • Emma Appleby7 months ago
    Emma Appleby

    Emma Appleby

    7 months ago
    Update from the Page owner

    Share this update to help us raise more

  • Emma Appleby7 months ago
    Emma Appleby

    Emma Appleby

    7 months ago

    Due to the continued situation with Teagan's health and the lack of progress made in stopping the seizures it has confirmed our commitment to take her to Holland for treatment. Whereas our initial option included a subsidised treatment plan, Holland must be totally self funded at an estimated cost of over £10,000. Our current efforts have already covered a majority of this, however we will continue to fundraise to achieve this and give Teagan the best chance and treatment in Holland. We thank you for your continued support.

    Share this update to help us raise more

8 months ago

Emma Appleby started crowdfunding

Leave a message of support

Page last updated on: 5/25/2019 00.25

Supporters

312

  • Kelly Tritton

    Kelly Tritton

    May 25, 2019

    Is not alot Hun but every penny helps.really hope she gets the treatment she needs . The difference it made is amazing . Always here if u need me X

    £10.00

  • Aaron

    Aaron

    May 21, 2019

    Hope you reach your target and you daughter continues to stay better. Bless. :-)

    £5.00

  • Anonymous

    Anonymous

    May 21, 2019

    Keep fighting you are an inspiration to so many

    £30.00

  • Susan Llewelyn

    Susan Llewelyn

    May 21, 2019

    £20.00

  • Anonymous

    Anonymous

    May 21, 2019

    Keep going we are all with you xxx

  • Wendy H

    Wendy H

    May 21, 2019

    £40.00

  • Amy Wakelin

    Amy Wakelin

    May 21, 2019

    £10.00

Emma Appleby

Become a supporter

Help Emma Appleby raise more

About the fundraiser
Emma Appleby

Emma Appleby

Canterbury, UK

Report this Page
Donate