Teagan is 9 years old and suffers from a rare genetic condition called Idic15. Epilepsy can come as part of this condition. Unfortunately Teagan has a very severe case of epilepsy called Lennox Gastaut Syndrom. Teagan can have up to as many as 300 seizures a day. These present in all different severity and types of seizures. We have tried multiple epilepsy medications over the years and even had a VNS fitted two years ago with unfortunately no success.

As I'm sure many of you are aware we have been fighting for Teagan to be prescribed medical cannabis to hopefully help with her seizures. We are still waiting for guidelines to be released but am unsure of how long this will take.

Taking everything into consideration, we have decided that we need to take the huge step of taking Teagan abroad to trial medical cannabis. If this is successful we will have a much stronger case to present back in England to prove it helps her.

Unfortunately this will not be quick or easy to do. We will need to spend at least 6 weeks to ensure the medication has had a chance to work and this will incur huge financial costs. We are asking if you could help support us in making our daughters life better and hopefully seizure free.

Thank you for taking the time to read this. If you wish to keep up to date on Teagan's story, please follow her on Facebook at helpforteagan ❤

UPDATE
Everything is booked for Holland....I think!
After the expense of getting out there, staying for a few days and the two different medications we need to get - it's eaten half of our budget!!!
We can't risk Teagan not having this medication available once she's on it and with the ongoing monthly cost for just one of the medications being just over £1500 (without taking travelling costs into consideration) we have decided to re-activate the fundraising page. Thank you to everyone who has supported us xx