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Emma Appleby raised £12,592.1 from 378 supporters

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Closed 01/12/2019

0%
£12,592
raised of £15,000 target by 378 supporters

    Weʼve raised £12,592 to Help Teagan get medical treatment abroad

    Canterbury, UK
    Funded on Sunday, 1st December 2019

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    Story

    Teagan is 9 years old and suffers from a rare genetic condition called Idic15. Epilepsy can come as part of this condition. Unfortunately Teagan has a very severe case of epilepsy called Lennox Gastaut Syndrom. Teagan can have up to as many as 300 seizures a day. These present in all different severity and types of seizures. We have tried multiple epilepsy medications over the years and even had a VNS fitted two years ago with unfortunately no success.

    As I'm sure many of you are aware we have been fighting for Teagan to be prescribed medical cannabis to hopefully help with her seizures. We are still waiting for guidelines to be released but am unsure of how long this will take.

    Taking everything into consideration, we have decided that we need to take the huge step of taking Teagan abroad to trial medical cannabis. If this is successful we will have a much stronger case to present back in England to prove it helps her.

    Unfortunately this will not be quick or easy to do. We will need to spend at least 6 weeks to ensure the medication has had a chance to work and this will incur huge financial costs. We are asking if you could help support us in making our daughters life better and hopefully seizure free.

    Thank you for taking the time to read this. If you wish to keep up to date on Teagan's story, please follow her on Facebook at helpforteagan ❤

    UPDATE
    Everything is booked for Holland....I think!
    After the expense of getting out there, staying for a few days and the two different medications we need to get - it's eaten half of our budget!!!
    We can't risk Teagan not having this medication available once she's on it and with the ongoing monthly cost for just one of the medications being just over £1500 (without taking travelling costs into consideration) we have decided to re-activate the fundraising page. Thank you to everyone who has supported us xx

    Updates

    4

    • Emma Appleby3 months ago
      Emma Appleby

      Emma Appleby

      3 months ago
      Update from the Page owner

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    • Emma Appleby7 months ago
      Emma Appleby

      Emma Appleby

      7 months ago

      Teagan has now been on the medication for just under 2 months and she is thriving!! Unfortunately we still have no NHS prescription so are being forced to go abroad again. We do have a private prescription but import costs change the cost of one 10ml bottle from £150 to £500 - this would equal £6000 for one months medication!! We have the support of an MP this time too. Tonia Antoniazzi has offered to come with me to Holland. We have asked the home office to provide us with a compassionate import licence so we are awaiting their decision.

      Share this update to help us raise more

    • Emma Appleby1 year ago
      Emma Appleby

      Emma Appleby

      1 year ago
      Update from the Page owner

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    1 year ago

    Emma Appleby started crowdfunding

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    Page last updated on: 10/2/2019 15.46

    Supporters

    378

    • Norman Mackenzie

      Norman Mackenzie

      Oct 2, 2019

      £50.00

    • Katie

      Katie

      Sep 27, 2019

      £5.00

    • Anonymous

      Anonymous

      Sep 13, 2019

      Listened to Radio 2 and hope you get all that you need to continue treatmentBest wishes

      £30.00

    • Anonymous

      Anonymous

      Sep 12, 2019

      Best Wishes

      £30.00

    • Mike

      Mike

      Sep 11, 2019

      Really hope you smash this target. You're doing an unbelievable job and treatment should be made available now not later.

      £10.00

    • Anonymous

      Anonymous

      Sep 11, 2019

      I heard your story on radio 2 today and it brought tears to my eyes. No one should have to be in the situation you and your daughter are. Good luck x

      £20.00

    • linda scantlin

      linda scantlin

      Sep 11, 2019

      I do hope you get medication sorted soon .You shouldn't have to be paying for something that so obviously works. x

      £40.00

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    About Crowdfunding
    About the fundraiser
    Emma Appleby

    Emma Appleby

    Canterbury, UK

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