People of Swindon and the wider community we need your help!!!

Good friends of ours Danny & Kirsty Hyde who I’m sure many of you will know have reached out and asked for our support in raising funds for what will be a life changing operation for their beautiful son Hayden!!

Hayden is in urgent need of an operation and the waiting list through the NHS is over 2 years which in a nutshell is too late for the little man! They have enquired about going private but the op would be a minimum £50,000 and this is where we all come in…

We have decided to do a 20 mile twilight walk starting at the Greyhound pub in Swindon (where Dan has spent many a Sunday afternoon) on Friday September 8th at midnight passing through Purton, Cricklade and Fairford before culminating at the New Inn in Lechlade (where Dan has spent many a Saturday afternoon 😂)

We are reaching out to you all (friends, family, ex team mates of Dans, colleagues of Kirstys etc etc) to participate in this walk (where we would hope each entrant would - A) donate £50 themselves and B) aim to fundraise upwards of £500 from friends/family/workplaces etc which would all go onto our main just giving page (link below). If we could get 50+ people doing this then we will be a chunk of the way there!!!!

We are pleading with you all to go out of your way to really help such a wonderful family do whatever is required to save their little boy!!

The committee of this fundraiser consists of… Dave Slattery, Ajay Sahota, Dave Gee, Matt Pratley, Paddy Slattery, Mark Belcher & Kev Sandhu. Can you please let one of these lads know whether you can help in any way and if you are up for the challenge of our twilight walk… they will then give you all of the details you need to partake. (Contact details are available through Dan or Kirst if you don’t have any of the lads numbers)

We will follow up this message with another which is a message from Kirsty (Hayden’s mum) explaining the situation more…

Thank you everyone for taking the time to read this and for what I’m sure will be an overwhelming show of support…

Please share these messages far and wide to any group your in or social media you’re on, we will all be eternally grateful!

LETS DO THIS!!!!!

Back story to hayden and why we are raising money!

“Hayden was born early at 29weeks, it was a tough battle but he got through it fighting all the way. At five weeks old we had the devastating news that hayden would spend the rest of his life with a disability and was diagnosed with quadriplegic cerebral palsy and global developmental delay (learning difficulties). Living with a child with a disability isn’t easy and you’re hit with so many challenges but life is also super precious and you have so many magical moments that make the hard time all worth it. Hayden’s had a pretty good run not needing anything major but then lockdown hit! 2020 with lack of services and having to isolate it definitely had an effect on hayden but it didn’t start showing till 2021. Hayden was in so much pain but anyone who knows hayden personally knows he hates to make a fuss and never admits to being in bad way,but it was bad and we as a family knew he was really struggling. It wasn’t until late 2021 that it got too much and he broke down, it was heartbreaking! But we are lucky that hayden has an amazing team working around and by 2022 he started pain management which was a godsend it helped calm Hayden’s body and slow down the spasms that ripped through him! Hayden was sent for X-ray as a curve in Hayden’s back was forming! Hayden was diagnosed with scoliosis at his Neuromuscular clinic the curve was at 27 degrees but his doctor was not concerned and as hayden is coming to the end of his growing it shouldnt get worse and he would have a review in 18months. Unfortunately haydens back got worse and he was leaning over on his right side more and more so I requested him to be seen sooner. 9months after the first X-rays haydens xray showed that he had rapidly progressing scoliosis, the curve is now at 53degrees and hayden was referred to Oxford to see a spinal specialist as Hayden’s only option left is to have spinal surgery! Hayden was so grown up and has excepted the news of needing an operation and that it would need to be soon! Mentally it’s had a real big impact on hayden and is very daunting and waiting for an appointment just to see the surgeon has been long but we got there on June 13th 2023. Everything we already knew was confirmed after new X-ray we were told an operation is his only option and without it, it would get worse so we have been put on a waiting list that has a wait of at least a year minimum, to which could highly likely make hayden bed bound as he’s already had to have emergency specialist seating made to help accommodate his changing body shape, and school having to have training for choking because his head is pulling back and up making eating and drinking harder as well as driving his powerchair. So we have decided to look into private surgery and this is where we are calling on any help possible as to get the life changing surgery is at the high price of at least £50,000! Going private if we can get the money means getting an operation in a matter of months not years. As a family we are forever grateful to each and every person that can help in anyway. Love The Hyde family xxx