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Darren Sims raised £2,230 from 46 supporters

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Closed 31/01/2019

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£2,230raised of £10,000 target by 46 supporters

    Weʼve raised £2,230 to help Jenson with improvements to his home to accommodate his condition - Spinal Muscular Atrophy (SMA)

    Funded on Thursday, 31st January 2019

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    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Jenson has a medical condition with the name, Spinal Muscular Atrophy (SMA) Type 2, Jenson is completely dependent on his parents for all of his needs, twenty four hours a day.
    The family need adaptations to their home to enable Jenson to grow and progress in a safe and suitable environment & his family all want to stay in their family home. Jenson has been awarded a Grant of £30,000 from our local Council. However the adaptations that need to be done to the house is going to cost around £60,000, So we have to raise £30,000 which will be done by fundraising and events.

    The work that is needed include a Single Storey Extension to the back of our house, A Ramp, Widening of Doorways, Removal of downstairs walls, Wet room, Installation of a ceiling track & Hoist, amongst other works. This will help Jenson a lot as he will have his own room that he can access with his wheelchair, as when he gets bigger he will get a lot heavier too.

    Message from Jenson's parents - Jenson was diagnosed with SMA when he was 14 months old and as you can imagine our world felt like it was torn apart. Since the diagnosis we have learnt about the condition and what his needs are and what they will be in the future but we are always still learning new things about it. There is no cure for Jenson's condition, it is a genetic disease that causes Muscle weakness and progressive loss of movement. This occurs due to deterioration in the nerve cells (motor Neurones) connecting the brain and spinal cord to the body's muscles.

    As the link between the nerves and muscles breaks down, the muscles that are used for activities such as crawling, walking, sitting up, and moving the head become progressively weaker and shrink (atrophy), Mental abilities are unaffected by SMA. There is no treatment for his condition and if Jenson becomes ill it effects him so much worse than a normal child of his age. Jenson can go downhill fast for even just what would be a simple cough and cold. Thank you everyone x

    Updates

    5

    • Darren Sims1 year ago
      Darren Sims

      Darren Sims

      1 year ago

      Just under £3400 before we reach the £30,000 target, please keep donating. We have our final fundraiser for Jenson this Friday at Snooker City, Broadwalk, Bristol Friday 28th September 8pm onwards There is a MEGA RAFFLE for tickets contact Daz or Jenson's family. See you there, will be an emotional and amazing night Families welcome, live music, food available

      Update from the Page owner

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    • Darren Sims1 year ago
      Darren Sims

      Darren Sims

      1 year ago

      we're currently at £21,340 of the £30,000 target required, thank you so much everyone who has helped in whatever way, all the best Daz :-) x

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    • Darren Sims1 year ago
      Darren Sims

      Darren Sims

      1 year ago

      £20,160 raised so far out of the £30,000 required. This Sunday 24th June another event at Rising Sun Ashton full details on the poster, please keep sharing this link. Thanks Daz x

      Update from the Page owner

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    2 years ago

    Darren Sims started crowdfunding

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    Page last updated on: 12/19/2018 15.10

    Supporters

    46

    • Ian Williams Foundation

      Ian Williams Foundation

      Dec 19, 2018

      Donation from Ian Williams Foundation

      £150.00

    • Aisling Bates

      Aisling Bates

      Sep 29, 2018

      For a very special boy 💫

      £20.00

    • Anonymous

      Anonymous

      Sep 26, 2018

      £20.00

    • Lisa Hawkes

      Lisa Hawkes

      Sep 25, 2018

      Hope you reach your target, you do such an amazing job. Here is my bid money for the auction of the Jonny Marr photo. Wishing you all the very best Lisa xx

      £50.00

    • Shanade

      Shanade

      Sep 7, 2018

      £5.00

    • Natasha Casling

      Natasha Casling

      Sep 6, 2018

      Good luck in raising the funds you need. God bless x

      £10.00

    • Lauren May

      Lauren May

      Jul 8, 2018

      Hi Guys I know its not much (my maternity pay has finished) but realised we didnt buy a raffle ticket or anything yesterday! :)

      £5.00

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    Darren Sims

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