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£2,080raised of £10,000 target by 45 supporters

Weʼre raising £10,000 to help Jenson with improvements to his home to accommodate his condition - Spinal Muscular Atrophy (SMA)

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Story

Jenson has a medical condition with the name, Spinal Muscular Atrophy (SMA) Type 2, Jenson is completely dependent on his parents for all of his needs, twenty four hours a day.
The family need adaptations to their home to enable Jenson to grow and progress in a safe and suitable environment & his family all want to stay in their family home. Jenson has been awarded a Grant of £30,000 from our local Council. However the adaptations that need to be done to the house is going to cost around £60,000, So we have to raise £30,000 which will be done by fundraising and events.

The work that is needed include a Single Storey Extension to the back of our house, A Ramp, Widening of Doorways, Removal of downstairs walls, Wet room, Installation of a ceiling track & Hoist, amongst other works. This will help Jenson a lot as he will have his own room that he can access with his wheelchair, as when he gets bigger he will get a lot heavier too.

Message from Jenson's parents - Jenson was diagnosed with SMA when he was 14 months old and as you can imagine our world felt like it was torn apart. Since the diagnosis we have learnt about the condition and what his needs are and what they will be in the future but we are always still learning new things about it. There is no cure for Jenson's condition, it is a genetic disease that causes Muscle weakness and progressive loss of movement. This occurs due to deterioration in the nerve cells (motor Neurones) connecting the brain and spinal cord to the body's muscles.

As the link between the nerves and muscles breaks down, the muscles that are used for activities such as crawling, walking, sitting up, and moving the head become progressively weaker and shrink (atrophy), Mental abilities are unaffected by SMA. There is no treatment for his condition and if Jenson becomes ill it effects him so much worse than a normal child of his age. Jenson can go downhill fast for even just what would be a simple cough and cold. Thank you everyone x

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Updates

5

  • Darren Sims3 months ago
    Darren Sims

    Darren Sims

    3 months ago

    Just under £3400 before we reach the £30,000 target, please keep donating. We have our final fundraiser for Jenson this Friday at Snooker City, Broadwalk, Bristol Friday 28th September 8pm onwards There is a MEGA RAFFLE for tickets contact Daz or Jenson's family. See you there, will be an emotional and amazing night Families welcome, live music, food available

    Update from the Page owner

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  • Darren Sims5 months ago
    Darren Sims

    Darren Sims

    5 months ago

    we're currently at £21,340 of the £30,000 target required, thank you so much everyone who has helped in whatever way, all the best Daz :-) x

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  • Darren Sims6 months ago
    Darren Sims

    Darren Sims

    6 months ago

    £20,160 raised so far out of the £30,000 required. This Sunday 24th June another event at Rising Sun Ashton full details on the poster, please keep sharing this link. Thanks Daz x

    Update from the Page owner

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1 year ago

Darren Sims started crowdfunding

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Page last updated on: 9/29/2018 7:24 PM

Supporters

45

  • Aisling Bates

    Aisling Bates

    Sep 29, 2018

    For a very special boy 💫

    £20.00

  • Anonymous

    Anonymous

    Sep 26, 2018

    £20.00

  • Lisa Hawkes

    Lisa Hawkes

    Sep 25, 2018

    Hope you reach your target, you do such an amazing job. Here is my bid money for the auction of the Jonny Marr photo. Wishing you all the very best Lisa xx

    £50.00

  • Shanade

    Shanade

    Sep 7, 2018

    £5.00

  • Natasha Casling

    Natasha Casling

    Sep 6, 2018

    Good luck in raising the funds you need. God bless x

    £10.00

  • Lauren May

    Lauren May

    Jul 8, 2018

    Hi Guys I know its not much (my maternity pay has finished) but realised we didnt buy a raffle ticket or anything yesterday! :)

    £5.00

  • Maggie Robbins

    Maggie Robbins

    Jul 4, 2018

    £20.00

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Darren Sims

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