16%
£8,369raised of £50,000 target by 231 supporters

Weʼre raising £50,000 to Fund IVF so we can have a sibling for Henry and he can have his bone marrow transplant

Location
Harwich, Essex, United Kingdom
Time left
29 days to go

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Story

Henry is our miracle baby (I have a brain tumour and was told it would be unlikely I could conceive) born in November 2015 after an incredibly difficult pregnancy and being given only a 20% chance of survival. He spent three weeks in the NICU and fought for his life but we had no idea why he was so unwell.

In March 2016, following 10 blood transfusions, a bone marrow biopsy and genetic testing, Henry was diagnosed with Diamond Blackfan Anaemia (DBA), an extremely rare genetic disorder meaning his bone marrow does not function properly so he cannot make his own red blood cells. Henry is unique, not only does he have a faulty DBA gene, but he is the only person EVER to also have a faulty myelodysplasia gene, making it more likely that he will develop leukaemia.

Since then, Henry has had countless procedures requiring a lot of time in hospital. He has to have a blood transfusion every 3-4 weeks to stay alive and daily medication to get rid of the excess iron stored in his organs but this is not a good long-term option for him. Henry's best chance at a long and healthy life is to have a bone marrow transplant.

Because of the risks involved, the doctors have said this is only possible if the transplant comes from a sibling who has the same tissue type as Henry (stem cells from the umbilical cord so no harm to baby!). This means we will need IVF to ensure the sibling is a match with Henry's cells and also does not carry the same gene mutations as he does. We always wanted Henry to have a sibling so ensuring we have one without DBA and also a match for Henry is a massive bonus! However, the NHS have refused to fund this so we have to raise the money ourselves.

Each cycle of IVF costs approximately £15,000 and on average, it takes three cycles to be successful, so we have a lot of work to do!

He has had such a fight for his life since day one and is the bravest, sweetest boy, please help us to help him keep fighting.

Thank You

Zoe, Craig & Henry xxx

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Updates

16

  • Zoe Alderson12 days ago
    Zoe Alderson

    Zoe Alderson

    12 days ago

    Evening all! Just a quick one to say thanks to all who came/helped with Henry's fun day last weekend, we raised just over £1500 which is magnificent! So added to all our other offline donations, were up to £11,700!!! Also, we're on BBC Look East at 6.30pm this evening so tune in 😎 x

    Update from the Page owner

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  • Zoe Aldersona month ago
    Zoe Alderson

    Zoe Alderson

    a month ago

    Hi everyone! So sorry for being rubbish at giving an update on here. We have had a really tough few weeks with unexpected test results and trying to come to terms with the reality that Henry's a poorly boy. But, we're very pleased to say that with some more (very kind) offline donations, we're at £10,000!!! Which is phenomenal and all we can say is thank you. We still need help to get to our total so please keep talking about Henry and sharing his story so we can get him the treatment he needs. Thank you xxx

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  • Zoe Alderson2 months ago
    Zoe Alderson

    Zoe Alderson

    2 months ago

    MRI scan in London today to measure how much iron Henry has stored in his liver which is a dangerous side effect of all the blood transfusions. The results will denote how much of the chelation medicine Henry will have to take each day to get rid of the excess iron before it permanently damages his organs. If he gets his transplant, we won't have to worry about any of this anymore 😔. Thanks so much for all your donations, it means so much to all of us x

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3 months ago

Zoe Alderson started crowdfunding

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Supporters

231

  • EADT reader

    EADT reader

    Sep 22, 2017

    £10.00

  • Ron Barton

    Ron Barton

    Sep 18, 2017

    £10.00

  • Benjamin Dale

    Benjamin Dale

    Sep 18, 2017

    Keep up the great work Zoe and Craig. Hope you reach your target amount, wishing Henry all the best for the future too.

    £10.00

  • Anonymous

    Anonymous

    Sep 16, 2017

    💙

  • Pat

    Pat

    Sep 16, 2017

    Hope it all works out and you get to enjoy your second child, as well as saving Henry.

    £10.00

  • Anonymous

    Anonymous

    Sep 16, 2017

    Good luck

    £10.00

  • Damien Morris

    Damien Morris

    Sep 15, 2017

    Good luck on all fronts 👍

    £50.00

Zoe Alderson

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About the fundraiser
Zoe Alderson

Zoe Alderson

Harwich, Essex, United Kingdom

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