12%
£6,382raised of £50,000 target by 181 supporters

Weʼre raising £50,000 to Fund IVF so we can have a sibling for Henry and he can have his bone marrow transplant

Location
Harwich, Essex, United Kingdom
Time left
88 days to go

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Story

Henry is our miracle baby (I have a brain tumour and was told it would be unlikely I could conceive) born in November 2015 after an incredibly difficult pregnancy and being given only a 20% chance of survival. He spent three weeks in the NICU and fought for his life but we had no idea why he was so unwell.

In March 2016, following 10 blood transfusions, a bone marrow biopsy and genetic testing, Henry was diagnosed with Diamond Blackfan Anaemia (DBA), an extremely rare genetic disorder meaning his bone marrow does not function properly so he cannot make his own red blood cells. Henry is unique, not only does he have a faulty DBA gene, but he is the only person EVER to also have a faulty myelodysplasia gene, making it more likely that he will develop leukaemia.

Since then, Henry has had countless procedures requiring a lot of time in hospital. He has to have a blood transfusion every 3-4 weeks to stay alive and daily medication to get rid of the excess iron stored in his organs but this is not a good long-term option for him. Henry's best chance at a long and healthy life is to have a bone marrow transplant.

Because of the risks involved, the doctors have said this is only possible if the transplant comes from a sibling who has the same tissue type as Henry (stem cells from the umbilical cord so no harm to baby!). This means we will need IVF to ensure the sibling is a match with Henry's cells and also does not carry the same gene mutations as he does. We always wanted Henry to have a sibling so ensuring we have one without DBA and also a match for Henry is a massive bonus! However, the NHS have refused to fund this so we have to raise the money ourselves.

Each cycle of IVF costs approximately £15,000 and on average, it takes three cycles to be successful, so we have a lot of work to do!

He has had such a fight for his life since day one and is the bravest, sweetest boy, please help us to help him keep fighting.

Thank You

Zoe, Craig & Henry xxx

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Updates

12

  • Zoe Alderson

    Zoe Alderson

    4 days ago

    Zoe Alderson

    Morning! No updates over the weekend as we were busy making fudge 😁. We're doing so well with the donations, thank you. Henry was lucky enough to go on a steam train a few weeks ago and he got super excited about it, he's just as excited about the donations too x

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  • Zoe Alderson

    Zoe Alderson

    7 days ago

    Zoe Alderson

    Thanks so much for your donations today, it's been a quiet day here, nothing too exciting...until Craig pointed out that Izzy Judd was kind enough to give us a tweet! So very kind, thank you. I'd contacted her about her book, Dare to Dream (highly recommend btw) and had mentioned Henry. Still working hard to get his name out there 😁 xx

    Update from the Page owner

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  • Zoe Alderson

    Zoe Alderson

    9 days ago

    Zoe Alderson

    Transfusion no.26 done and dusted! Look at the before and after shots...from grumpy and grey to pink and jolly, all from a bag of blood kindly donated from a complete stranger who gave up their time to help someone they'll never meet. Amazing 🤗. Henry is such a superstar though, never complains about any of it. Huge thanks to all the lovely staff on Elective at Colchester Hospital who are the most super people and take such good care of us. Even bigger thanks for all of your donations so far, we're so grateful xx

    Update from the Page owner

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a month ago

Zoe Alderson started crowdfunding

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Supporters

181

  • Christopher Mahoney

    Christopher Mahoney

    Jul 26, 2017

    £10.00

  • Anonymous

    Anonymous

    Jul 25, 2017

    I was very touched by the courage of your little boy and by your courage too. I have 2 young children and it must be very hard for you. All the best for your future to all and fingers crossed!!

    £10.00

  • Nick Jones

    Nick Jones

    Jul 25, 2017

    £10.00

  • Oliver Denney

    Oliver Denney

    Jul 25, 2017

    £10.00

  • Anita Hale

    Anita Hale

    Jul 25, 2017

    I wish you every success x

    £10.00

  • Sunita M

    Sunita M

    Jul 24, 2017

    £20.00

  • Dan Humble

    Dan Humble

    Jul 24, 2017

    £10.00

Zoe Alderson

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About the fundraiser
Zoe Alderson

Zoe Alderson

Harwich, Essex, United Kingdom

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