18%
£9,336raised of £50,000 target by 243 supporters

Weʼre raising £50,000 to Fund IVF so we can have a sibling for Henry and he can have his bone marrow transplant

Location
Harwich, Essex, United Kingdom

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Story

Henry is our miracle baby (I have a brain tumour and was told it would be unlikely I could conceive) born in November 2015 after an incredibly difficult pregnancy and being given only a 20% chance of survival. He spent three weeks in the NICU and fought for his life but we had no idea why he was so unwell.

In March 2016, following 10 blood transfusions, a bone marrow biopsy and genetic testing, Henry was diagnosed with Diamond Blackfan Anaemia (DBA), an extremely rare genetic disorder meaning his bone marrow does not function properly so he cannot make his own red blood cells. Henry is unique, not only does he have a faulty DBA gene, but he is the only person EVER to also have a faulty myelodysplasia gene, making it more likely that he will develop leukaemia.

Since then, Henry has had countless procedures requiring a lot of time in hospital. He has to have a blood transfusion every 3-4 weeks to stay alive and daily medication to get rid of the excess iron stored in his organs but this is not a good long-term option for him. Henry's best chance at a long and healthy life is to have a bone marrow transplant.

Because of the risks involved, the doctors have said this is only possible if the transplant comes from a sibling who has the same tissue type as Henry (stem cells from the umbilical cord so no harm to baby!). This means we will need IVF to ensure the sibling is a match with Henry's cells and also does not carry the same gene mutations as he does. We always wanted Henry to have a sibling so ensuring we have one without DBA and also a match for Henry is a massive bonus! However, the NHS have refused to fund this so we have to raise the money ourselves.

Each cycle of IVF costs approximately £15,000 and on average, it takes three cycles to be successful, so we have a lot of work to do!

He has had such a fight for his life since day one and is the bravest, sweetest boy, please help us to help him keep fighting.

Thank You

Zoe, Craig & Henry xxx

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Updates

17

  • Zoe Alderson2 months ago
    Zoe Alderson

    Zoe Alderson

    2 months ago

    Oh, hello £15,000, we've been waiting for you 😁! Well, we're officially up to target no.1, we have enough to get our name down for the first cycle of IVF. We are so chuffed, a huge thank you to everyone who has helped us along the way so far. I'll be on the phone to the clinic first thing on Monday to get us booked in! 💃🍷🎉

    Update from the Page owner

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  • Zoe Alderson2 months ago
    Zoe Alderson

    Zoe Alderson

    2 months ago

    Evening all! Just a quick one to say thanks to all who came/helped with Henry's fun day last weekend, we raised just over £1500 which is magnificent! So added to all our other offline donations, were up to £11,700!!! Also, we're on BBC Look East at 6.30pm this evening so tune in 😎 x

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  • Zoe Alderson3 months ago
    Zoe Alderson

    Zoe Alderson

    3 months ago

    Hi everyone! So sorry for being rubbish at giving an update on here. We have had a really tough few weeks with unexpected test results and trying to come to terms with the reality that Henry's a poorly boy. But, we're very pleased to say that with some more (very kind) offline donations, we're at £10,000!!! Which is phenomenal and all we can say is thank you. We still need help to get to our total so please keep talking about Henry and sharing his story so we can get him the treatment he needs. Thank you xxx

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5 months ago

Zoe Alderson started crowdfunding

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Supporters

243

  • Anonymous

    Anonymous

    Oct 25, 2017

    £20.00

  • Anonymous

    Anonymous

    Oct 24, 2017

  • Anonymous

    Anonymous

    Oct 24, 2017

    Best of luck.

    £30.00

  • Anonymous

    Anonymous

    Oct 20, 2017

    I don't have much at the moment . But I read an article on drivetribe that lead me here . I'll donate something And my best wishes

    £2.00

  • Martin Reilly

    Martin Reilly

    Oct 20, 2017

    Sending our love and support. Martin & Jati x

    £50.00

  • Anonymous

    Anonymous

    Oct 19, 2017

    Good luck little man

  • A Rowsell

    A Rowsell

    Oct 18, 2017

    £20.00

About the fundraiser
Zoe Alderson

Zoe Alderson

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Harwich, Essex, United Kingdom

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