Stanley Maycey is a little boy who has KCNQ2 genetic mutation this is a very rare genetic disorder and not a lot is known about it. It causes epilepsy, a delay in his development and suffers from hypotonia which means he has very weak muscle tone, though out his whole body so he finds it hard to chew food and swallow liquids he cannot stand on his own, walk or even crawl. He doesn’t talk and cannot feed himself so life can be frustrating for him sometimes. When he was born he had 18- 20 seizures a day, he was in hospital for the first five months of his life whilst doctors tried to control his seizures with various combinations of epileptic medication.

Any money raised will go towards the specialist equipment and ongoing physiotherapy to make his dream to walk come true.