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£1,010raised of £3,000 target by 38 supporters

Weʼre raising £3,000 to help fund hollies eye surgery

Liverpool
16 days to go

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Story

My daughter Hollie is 9 months old she was born with a rare genetic condition called Blepharophimosis ptosis epicanthus inversus syndrome (BPES) it affects 1 in 50,000 people, she has abnormally narrow eyelids horizontally, she uses chin elavation to look under her eyelids.

Me and my husband are trying to raise enough money to be able to get hollie the operation she needs, we have been to the nhs numerous times to be told they would not need to opereate unless her vision becomes impaired. ( which to us seems odd as surely you would fix it before her vision changes)

we have been to see a private hospital (moorfields eye hospital in London) for a second opinion (with help for cost from a family member) which the consultant there has also agreed with me and my husband and says she will highly benefit from a temporary surgery ideally before she starts walking and to prevent any neck problems in the future. She will have her main operation when she is 5/6years old.

we went back to our NHS hospital with the medical report from moorfield private hospital(as they requested) to be told once again they will not do the temporary operation.

We have asked time and time again to be trasfered to moorfield via NHS to be told its in the middle of transfer, then weeks and weeks later that they wont do it.

It has got exhausting and frustrating And this is why we have ended up here.

We just believe that our little girl deserves the best.

any donations would be very muchly appreciated. And please shar share share !

Thank you for taking the time to read Hollies story.

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Updates

2

  • Heaven Price7 months ago
    Heaven Price

    Heaven Price

    7 months ago

    Hi everyone I just wanted to say a huge thank you for your donations, with a lot of help from fundraising events my nan has done in Dorset we Have raised just over £2500 altogether I’m over the moon that our Hollie has so much support. ❤️

    Share this update to help us raise more

  • Heaven Price9 months ago
    Heaven Price

    Heaven Price

    9 months ago
    Update from the Page owner

    Share this update to help us raise more

9 months ago

Heaven Price started crowdfunding

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Page last updated on: 6/8/2018 10:20 AM

Supporters

38

  • Colliers Croft

    Colliers Croft

    Jun 8, 2018

    Please accept our donation raised by staff, residents and families at Colliers Croft Care Home in St. Helens.

    £205.00

  • Andy Harris

    Andy Harris

    Jan 11, 2018

    Help this little darling see the our wonderful world.

  • Alan Whittle

    Alan Whittle

    Jan 5, 2018

    £100.00

  • Adam Fletcher

    Adam Fletcher

    Jan 4, 2018

    Good luck Hollie, Adam and family.

    £50.00

  • Rafael Cortes

    Rafael Cortes

    Dec 1, 2017

    £30.00

  • Gemma Briant

    Gemma Briant

    Dec 1, 2017

    I wish I could give more, I hope you raise the money needed quickly xxx

    £50.00

  • Rob Langton

    Rob Langton

    Dec 1, 2017

    £10.00

Heaven Price

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About the fundraiser
Heaven Price

Heaven Price

Liverpool

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