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£204raised of £2,000 target by 12 supporters

Weʼre raising £2,000 to To get Malachi a Private Diagnosis and test to ascertain which type of Mitochondrial he has.

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Story

Malachi is a lovely boy. He has an older brother called Connor - who supports Liverpool Football Club. A younger sister called Violet (a right wee cutie). Malachi’s passion is sharks. I mean teddy bears are cuddly, dogs are cute but our boy loves sharks!

He looks like a normal child but behind that smile (which is never far away although some days he finds it hard to show and we his family have to deal with the screams of pain he gets daily).

Malachi has a condition called: Mitochondrial DNA Depletion (sound familiar? Well it is the same disease that sadly killed baby Charlie Gard). Malachi is currently undiagnosed and our NHS has let him down continually. Italian Doctors will be reviewing his medical files to this end - therefore we needs funds available for flights, accommodation etc if they feel they can help him.

Malachi has other complex issues but as he is undiagnosed we cannot be sure if they are related to the MITO or not. So please he needs your help to get that diagnosis.

As his mum "I hate"

I hate Mitochondrial disease. I hate what it's doing to Malachi. I hate it when he gets frustrated when he can't get his words out,

I hate when he says my legs are wobbly, meaning they are too tired to carry him,

I hate it when he falls, many times when he's trying to catch up with his brother and sister.

I hate it when he says he feels dizzy and looks pale due to lack of food intake.

I hate it when he's sitting on the sofa crying due to leg pain again.

I hate it when he's in the 3rd, 4th, 5th meltdown because he doesn't understand something, or he's anxious.

I hate it when we have to take him to hospital for his regular blood test, heart checks, brain scans, kidney checks, eye checks, and we have to tell him we are not going to hospital just to get him in the car 😢

Most of all I hate not knowing what the future holds for him and knowing there is nothing I can do about it! ♥️💚♥️💚♥️💚♥️💚♥️💚

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Holly Seymour

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    1 month ago

    Holly Seymour started crowdfunding

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    Page last updated on: 8/18/2018 7:29 PM

    Supporters

    12

    • Anonymous

      Anonymous

      Aug 18, 2018

      for MALACHI whit a lot of love ❤️💚Holly great mum I hug you

      £20.00

    • Anonymous

      Anonymous

      Aug 18, 2018

      Praying for your Malachi!

      £10.00

    • Elizabeth Petrucelli

      Elizabeth Petrucelli

      Aug 18, 2018

      I love you beautiful Malachi! I hope this helps Holly!

      £20.00

    • Jacqueline Pirie

      Jacqueline Pirie

      Aug 18, 2018

      £2.00

    • Patty Brunello

      Patty Brunello

      Jul 26, 2018

      Per Malachi affinché venga in Italia il prima possibile !

      £10.00

    • Agnese De Lullo

      Agnese De Lullo

      Jul 26, 2018

      🤗💞😘😘

      £2.00

    • Simone Bernadette

      Simone Bernadette

      Jul 26, 2018

      I hope you get the help you need for your gorgeous boy. Love and hugs xxx

      £20.00

    Holly Seymour

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    About the fundraiser
    Holly Seymour

    Holly Seymour

    Poole, UK

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