Malachi is a lovely boy. He has an older brother called Connor - who supports Liverpool Football Club. A younger sister called Violet (a right wee cutie). Malachi’s passion is sharks. I mean teddy bears are cuddly, dogs are cute but our boy loves sharks!

He looks like a normal child but behind that smile (which is never far away although some days he finds it hard to show and we his family have to deal with the screams of pain he gets daily).

Malachi has a condition called: Mitochondrial DNA Depletion (sound familiar? Well it is the same disease that sadly killed baby Charlie Gard). Malachi is currently undiagnosed and our NHS has let him down continually. Italian Doctors will be reviewing his medical files to this end - therefore we needs funds available for flights, accommodation etc if they feel they can help him.

Malachi has other complex issues but as he is undiagnosed we cannot be sure if they are related to the MITO or not. So please he needs your help to get that diagnosis.

As his mum "I hate"

I hate Mitochondrial disease. I hate what it's doing to Malachi. I hate it when he gets frustrated when he can't get his words out,

I hate when he says my legs are wobbly, meaning they are too tired to carry him,

I hate it when he falls, many times when he's trying to catch up with his brother and sister.

I hate it when he says he feels dizzy and looks pale due to lack of food intake.

I hate it when he's sitting on the sofa crying due to leg pain again.

I hate it when he's in the 3rd, 4th, 5th meltdown because he doesn't understand something, or he's anxious.

I hate it when we have to take him to hospital for his regular blood test, heart checks, brain scans, kidney checks, eye checks, and we have to tell him we are not going to hospital just to get him in the car 😢

Most of all I hate not knowing what the future holds for him and knowing there is nothing I can do about it! ♥️💚♥️💚♥️💚♥️💚♥️💚

www.facebook.com/groups/1059202884256941