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£6,531raised of £30,000 target by 122 supporters

Weʼre raising £30,000 to Our son Hugo who is 3 years old will be having a BONE MARROW TRANSPLANT in April. This will be a very tough 12 months for us.

Essex, UK
15 days to go

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Story

This fund will help us staus to keep the stress off financiall, help us pay for 6 weeks hotel sa, and all the other commitments we have over te next 2 years or so. Thank you so so much what we have so far has already reduced our stress so so much a will help us both to be close to Hugo .ur son Hugo needs a Bone Marrow Transplant. This is due to him having Beta Thalassemia Major which is a rare blood disorder. His bone marrow does not produce red blood cells.

Hugo is such a lovely happy boy and we need to give him the best chance of life as possible.

The bone marrow transplant will hopefully cure him from this. The procedure itself is very intense and dangerous. We are blessed as he has a donor who is a 99% match this reduces the risk of Graft verses host diseases.

There is a 6 week isolation stay in hospital after he has aggressive chemo therapy and new stem cells are put in. Then a 6 month isolation at home, traveling to London by car 2 to 3 times per week for the 6 months and a 12 month recovery period. (10% chance of death and 40% chance of Graft verses host)

The treatment is intense and we need to raise money for all the unforeseen things, the 6 week hospital we will need to rent an apartment for one of us, and the whole 12 months will be very difficult to work.

The money raised will help with the stress and burden also if there are any emergencies we would have the funds to act quickly..

Please help us to raise as much as we can, we would be so so great full. Hugo needs us both close to him to help him and support him through this journey.

This will be the toughest time of out lives and we need Hugo to be happy.

If you have any questions about his treatment, the condition or Hugo please get in touch.

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Updates

19

  • Hugo Khraud3 months ago
    Hugo Khraud

    Hugo Khraud

    3 months ago

    hi everyone. sorry i have not updated recently, and really sorry i have not thanked everyone individually for your generous donations. It has been a god send that people care and have helped us through this. Hugo has been doing pretty well at the moment. He did take a few steps yesterday which is a huge improvement from not walking at all. Hopefully the coming weeks he will improve and get stronger. Lets see how he goes over the next few weeks. thank you again for all your help.

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  • Hugo Khraud4 months ago
    Hugo Khraud

    Hugo Khraud

    4 months ago

    Hi Unfortunately things are not looking up. Hugo will be having 2 operations tomorrow, an endoscopy and a bone marrow harvest. Endoscopy is where they put a camera with a pincher down his throat to take a sample from his gut. Bone marrow harvest is where they will drill into his hip bone from the back and take a sample of bone marrow. This is being done as they still don't know why he has diarrhea and they need to investigate to rule out everything.

    Update from the Page owner

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  • Hugo Khraud4 months ago
    Hugo Khraud

    Hugo Khraud

    4 months ago

    HI some bad news Hugo was readmitted yesterday as there seems to be trouble with his tummy and bowls. Hugo seems ok in himself , not in any pain. We have to stay in hospital until the test are done and they will let us know the nest course of action. Hopefully it is a simple tummy bug, however we suspect its the Graft Versus Host disease is back in his gut. we fill find out in a few days. thank you again for all your support.

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10 months ago

Hugo Khraud started crowdfunding

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Page last updated on: 10/1/2018 4:42 PM

Supporters

122

  • Julie H

    Julie H

    Oct 1, 2018

    Best wishes to you all, and may everything go well Xx

    £10.00

  • Mark Hawkins

    Mark Hawkins

    Aug 10, 2018

    Missing You Hugo, hope you get better soon.. lots of love Edith Hawkins.. xx

    £20.00

  • Rob & Marie Aldridge

    Rob & Marie Aldridge

    Aug 6, 2018

    Thinking of you. Hope he gets better soon xxx

    £20.00

  • Dan Turner

    Dan Turner

    Jul 10, 2018

    Sending love to you all.

    £500.00

  • Gurdeep Lall

    Gurdeep Lall

    Jul 7, 2018

    Hope he gets well soon. God bless x

  • Harriet Spence

    Harriet Spence

    Jul 7, 2018

    Sending love and strength to all of you ❤️

    £30.00

  • Anonymous

    Anonymous

    Jun 21, 2018

    We wish you and your family well. We hope Gurj recovers soon x

Hugo Khraud

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About the fundraiser
Hugo Khraud

Hugo Khraud

Essex, UK

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