We did it!
Zeedee Sawyer-Hartley raised £5,168 from 292 supporters
or
Start your own crowdfunding page
Closed 12/03/2021
Weʼve raised £5,168 to to fund specialist equipment and adaptations
- Funded on Friday, 12th March 2021
Don't have time to donate right now?
Story
Our beautiful baby girl, Huné-Deandra Gascoigne, was born on the 11th November 2016. She was diagnosed at 6 months old with Spinal Muscular Atrophy.
SMA Type 1 is the biggest genetic killer of infants.
80% of babies with this defect typically die before 12 months and the remaining 20% before their second birthday.
This is due to the degenerative loss of muscles; starting with the arms, legs and trunk of the body, then moving onto swallowing and the respiratory system. The brain is not affected, and they have been tested to have at least average to above average intelligence.
There is no cure for SMA. However, things are changing.
Huné receives treatment called Spinraza (Nusinersen). This drug is administered via a lumbar puncture and means that SMA Type 1 is not always terminal, and Huné is now 4 years old and doing things we never thought possible.
This page is to fund medical equipment and adaptations to ensure Huné lives her life to the fulliest. We are in unchartered waters.
Thanks for looking and find out more about Huné and our family at @zeedee_jazz on Instagram and Hope4Huné on facebook!
Much Love,
Z&B xx
Updates
0
Updates appear here
Zeedee Sawyer-Hartley started crowdfunding
Leave a message of support
Supporters
292
Anonymous
Feb 27, 2021
❤️❤️❤️
£10.00
Anonymous
Feb 19, 2021
You and Ben are wonderful parents to a wonderful little girl.
Gaby Lawbuary-Stock
Jan 31, 2021
Hope it helps you guys, sorry it’s not more. X
£10.00
Jay Cope
Jan 28, 2021
Sending lots of love to you all 💕💕💕
£10.00
Anonymous
Jan 25, 2021
Wishing you all the best - thanks for sharing your story
£20.00
Tracey Rimmer
Jan 25, 2021
❤️
£10.00
Judy and Andy
Jan 24, 2021
£20.00
What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Great people make things happen
Do you know anyone in need or maybe want to help a local community cause?
Create you own page and donʼt let that cause go unfunded!
About Crowdfunding