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Zeedee Sawyer-Hartley raised £5,168 from 292 supporters

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Closed 12/03/2021

0%
£5,168
raised of £5,000 target by 292 supporters

    Weʼve raised £5,168 to to fund specialist equipment and adaptations

    Funded on Friday, 12th March 2021

    Don't have time to donate right now?

    Story

    Our beautiful baby girl, Huné-Deandra Gascoigne, was born on the 11th November 2016. She was diagnosed at 6 months old with Spinal Muscular Atrophy.

    SMA Type 1 is the biggest genetic killer of infants.

    80% of babies with this defect typically die before 12 months and the remaining 20% before their second birthday.

    This is due to the degenerative loss of muscles; starting with the arms, legs and trunk of the body, then moving onto swallowing and the respiratory system. The brain is not affected, and they have been tested to have at least average to above average intelligence.

    There is no cure for SMA. However, things are changing.

    Huné receives treatment called Spinraza (Nusinersen). This drug is administered via a lumbar puncture and means that SMA Type 1 is not always terminal, and Huné is now 4 years old and doing things we never thought possible.

    This page is to fund medical equipment and adaptations to ensure Huné lives her life to the fulliest. We are in unchartered waters.

    Thanks for looking and find out more about Huné and our family at @zeedee_jazz on Instagram and Hope4Huné on facebook!

    Much Love,

    Z&B xx

    Updates

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    Zeedee Sawyer-Hartley

    Updates appear here

      2 years ago

      Zeedee Sawyer-Hartley started crowdfunding

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      Page last updated on: 2/27/2021 09.23

      Supporters

      292

      • Anonymous

        Anonymous

        Feb 27, 2021

        ❤️❤️❤️

        £10.00

      • Anonymous

        Anonymous

        Feb 19, 2021

        You and Ben are wonderful parents to a wonderful little girl.

      • Gaby Lawbuary-Stock

        Gaby Lawbuary-Stock

        Jan 31, 2021

        Hope it helps you guys, sorry it’s not more. X

        £10.00

      • Jay Cope

        Jay Cope

        Jan 28, 2021

        Sending lots of love to you all 💕💕💕

        £10.00

      • Anonymous

        Anonymous

        Jan 25, 2021

        Wishing you all the best - thanks for sharing your story

        £20.00

      • Tracey Rimmer

        Tracey Rimmer

        Jan 25, 2021

        ❤️

        £10.00

      • Judy and Andy

        Judy and Andy

        Jan 24, 2021

        £20.00

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      Zeedee Sawyer-Hartley

      Zeedee Sawyer-Hartley

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