My daughter Imogen is 6 years old and lives with a rare genetic condition called XLH (X-linked hypophosphataemia), caused by a mutation in the PHEX gene. She is also severely autistic and has additional complex needs.

Every day brings challenges that most families never have to think about. Imogen struggles with mobility, fatigue and sensory difficulties, and as she grows, keeping her safe and comfortable becomes increasingly difficult.

We are raising £6,000 to help purchase a specialist buggy that will allow Imogen to access the community safely, attend appointments and enjoy family outings that many people take for granted. Any additional funds raised will be donated to support XLH awareness, research and families affected by this rare condition.

As parents, we do everything we can to give Imogen the best quality of life possible, but specialist equipment is incredibly expensive and often not fully funded.

Every donation, no matter the size, will make a real difference. If you are unable to donate, sharing this page would mean the world to us.

Thank you for taking the time to read Imogen’s story and for supporting our family.

💜 Chloe, Bex & Imogen 💜

#RareDiseaseAwareness #XLH #PHEXGene #AutismAwareness