Weʼve raised £3,275 to Help Lottie who is life limited and her family raise vital funds to ensure her quality of life and opportunities can be fulfilled.
- Sutton Coldfield, United Kingdom
- Children and youth
- Time left
- Funded on Monday, 28th November 2016
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Can you please help?
Lottie is a wonderful, happy, very cheeky little girl who lives in Sutton Coldfield, Birmingham with her brother, sister, mum and dad (Elliott, Millie, Vanessa and Ivor). She was born with an extremely rare chromosome abnormality: De novo deletion at 16q12.1 to q13, only 12 known in the world; and undetected during pregnancy. As her condition is so rare no one knew when she was born how it would impact on her life. Over the last 11 years her parents have worked tirelessly in supporting her medical /social needs and attending to the many medical appointments, therapies and surgeries needed to ensure Lottie is kept as healthy as possible.
Unfortunately, along with other difficulties, a major heart abnormality was found that could not be repaired, but with a number of surgeries (the first at 3 weeks old) could help Lottie have a limited life expectancy. Her mum and dad became determined to give her the best quality of life they could, to reach her full potential and live to the full, which they have done and continue to do so. Over time there have been many struggles due to poor health and huge delays in reaching her physical/mental milestones, but with determination and help she eventually sat up by herself at 4 years old and took her first wobbly steps at 8 years old. She goes to a local Special Needs School and enjoys every minute of her day.
Unexpectedly, Lottie's heart went into failure meaning no heart operations could help her and her life expectancy diminished from years to the unknown. As her heart tires she needs more medical support and equipment to help her. Lottie is now running out of time. Lottie's epilepsy has developed into life threatening seizures in which she stops breathing in her sleep and needs CPR. As we write this, they are yet to be controlled and are happening every week. Lottie needs 24hr care and emergency.
Please help improve Lottie's quality of life by generously donating. Thank you.
- a year ago
J Everetta year ago
Come on Ruth and Mandy......we are all rooting for you xxxxxxx
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J Everett started crowdfunding
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Lucys Cartwheel Challenge
Nov 14, 2016
A little more from Lucy's cartwheel challenge x
Nov 10, 2016
Well done to Ruth and all. Best wishes to Lottie and her family xx
Lucys Cartwheel Challenge from Emily
Nov 8, 2016
Lucy's Random Cartwheel Challenge from Emily
Nov 5, 2016
Hi, I remember Lottie when you brought Millie to Rainbows. i hope you raise lots of money to help you give Lottie some fun and make life a bit easier for you all. Hi to Millie! rabbit & squirrel.
Nov 5, 2016
Wishing Lottie and her family all good wishes and that monies raised helps them enjoy their time together.
Lynne Tapper (Pearson)
Nov 1, 2016
My mum posted the article in the Sutton observer to me. Sending my love to Vanessa, Ivor, Lottie, Millie and little Elliott xxx
Oct 31, 2016
About the fundraiser
Sutton Coldfield, United Kingdom
We are friends of Vanessa and Ivor and have known Lottie for all her life. We have seen their personal battle, with its highs and lows and are coming together now to support this special family who are graciously seeking support for their precious daughter Lottie.
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