Weʼve raised £7,815 to fund developmental equipment to help Jack become more independent. Mobility scooters, walking aids, further physio sessons.
- Ballyronan, Magherafelt, UK
- Funded on Saturday, 10th November 2018
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On the 31st July 2017, we were faced with the news that out little man had epilepsy... unaware of how this can alter a life, we spent a little while between wards and hospitals, nurses, doctors and consultants, trying to come to terms with what the future held for us.
Through time it became apparent that there were some developmental delays, not quite up to speed with his peers, but with Jacks epileptic activity considered ”chaotic”, I’m not sure how the rascal was supposed to be taking the big bad world in at the same time and so we reached across every avenue to help guide him along the rocky road.
We have been humbled to date at how helpful the NHS have been, how much they have done for us, whether its answering unanswered questions, the abundence of advice and support they have offered us. We have been so lucky to be able to access great pieces of equipment, but as we all know, funding within the NHS only stretches so far, and that is why we are on our quest to raise as much money as possible to collate some more “fun“ equipment, by FireFly Friends.
These include pieces such as the GoTo seat ( a seat which allows children like Jack with low tone to join in ordinary activities such as riding in the shopping trolley), the Splashy seat, a seat allowing kids to bath as close to a normal bath. The Upsee, to help kids experience the walking sensation for kids who may not ever walk unaided.
We really are so grateful for all our family and friends and the support they have offered us to date! We hope you can all share a Scone and Tea with us on the 18th August so you can see how much you all mean to us!!
Lots of love,
The Henry Crew
- 8 months ago
Enya Henry8 months ago
Who could have known how much of a difference this little seat would make to this little ones life.... the happiness and excitement when he sees it appearing from the car. He has been able to swing to his hearts content, sit as proud as punch in the shopping trolley and most importantly, play with his bestie as close to normal as we will get! My heart could burst! #GoToSeat #fireflyfriends #firefly Firefly thanks to auntie @fionnualahenry for the smashing pics ☺️☺️☺️ And thanks to you all for your kind donations 😘
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Oct 17, 2018
Big hugs and kisses Jack. Doing him so proud Enya and Brendan xx
Oct 14, 2018
John Watson, Caldwell
Oct 3, 2018
Well done to all involved, from all at Caldwell
Sep 28, 2018
Big love xx
Henk and all from Daikin
Sep 28, 2018
Sending you all our love and best wishes from Daikin xx
Sep 18, 2018
Sep 17, 2018
Good luck with your fundraising. Hope you enjoyed the hike.
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About the fundraiser
Ballyronan, Magherafelt, UK
We’re the Henry’s! Last Summer almost a year to this day, our rascal was diagnosed with epilepsy. Since then we’ve hit a few more bumps in the road with a lack of core strength it has led to a few developmental delays, that’s where the fab Firefly Friends come to save the day!