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Jackie Badger raised £155 from 12 supporters.

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Closed 07/10/2017

103%
£155raised of £150 target by 12 supporters

    Weʼve raised £155 to help to buy specialised equipment for an amazing young lady, Olivia Windle who has Juvenile Batten Disease.

    Time left
    Funded on Saturday, 7th October 2017

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    Story

    Hi everyone, I'm running in the Sheffield 10k on Sunday 24th September to raise money for my friends daughter Olivia Windle who has 'Juvenile Batten Disease'.

    Who is Olivia & why is she our good cause...?

    Olivia was born on the 21st February 2001, a healthy baby, weighing 8lb 2oz hitting all the milestones expected when walking & talking etc.

    At 3 years old, she started wearing glasses & was referred to the Sheffield Children's Hospital for regular check up's.

    In late 2008, Olivia's parents noticed that Olivia was starting to suffer further loss of vision but assumed she may just need her prescription adjusting. However, during a routine appointment with her consultant it was decided further tests were needed.

    January 9th 2009 is a date that will haunt the family forever!

    Olivia's consultant confirmed the devastating news that Olivia had a condition called 'Juvenile Batten Disease'.

    'Juvenile Batten Disease' is currently estimated to affect between 30-40 children and young people in the UK.

    Progression of the disease differs from child to child but almost always follows the same pattern:

    Firstly, loss of vision between ages 4-7, progressing until the child is completely blind, difficulties with concentration, short term memory & learning. From around 10 years onwards, the next stage of the disease presents as epileptic seizures. During the teenage years mobility becomes more difficult and the onset of childhood dementia causes increased learning difficulties, confusion & anxiety.

    Sadly, there is no current cure for the disease and the life expectancy of a child/young adult with the disease is 15-35.

    Olivia is now 16, completely blind, on medication to control her seizures and starting to lose her mobility. Despite this, Olivia loves dancing, is a huge Harry Potter fan & loves listening to music on her iPod, especially Westlife.

    Please help to make Olivia's life a little more special!

    The money raised will go towards specialised equipment - a new wheelchair, wet room & specialised bed to help make Olivia's life easier.

    She is an amazing & brave young lady, so come on everyone, dig deep and help to make a difference!!!

    Thank you xxx

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    Jackie Badger

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      5 months ago

      Jackie Badger started crowdfunding

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      Supporters

      12

      • joy watford

        joy watford

        Sep 24, 2017

        Good luck Jackie xxx

        £10.00

      • Haley Mangle

        Haley Mangle

        Sep 21, 2017

        Good luck Jackie, sorry I can't be there to cheer you on : )

        £20.00

      • Emma Wilmer

        Emma Wilmer

        Sep 21, 2017

        Good luck! Try and enjoy it! X

        £10.00

      • Anonymous

        Anonymous

        Sep 17, 2017

        Good luck JackieJo B xx

        £5.00

      • Kathryn Wilcock

        Kathryn Wilcock

        Sep 9, 2017

        A fantastic cause Jackie! Good luck

        £10.00

      • Faith Webster

        Faith Webster

        Sep 9, 2017

        Go Jackie x

        £10.00

      • Natalie Tuffnell

        Natalie Tuffnell

        Sep 9, 2017

        Jackie, what a lovely gesture for such a Special young lady.

        £10.00

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      Jackie Badger

      Jackie Badger

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