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Paul Bird raised £1,381 from 31 supporters.

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Closed 05/01/2018

27%
£1,381raised of £5,000 target by 31 supporters

    Weʼve raised £1,381 to Purchase a new wheelchair for Jack and give him his independence back which is priceless. Total cost £17,259

    Location
    Leeds, United Kingdom
    Time left
    Funded on Friday, 5th January 2018

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    Story

    My son Jack was involved in a road traffic accident earlier this year which wrote off his wheelchair accessible car but also wrote off his powered wheelchair which was in the back at the time. His car will be replaced through the Motobility scheme but this doesn't cover his wheelchair. We were forced to buy an old one off ebay after the crash that is holding together for now but it is outdated and we can't get the spares.

    Jack suffers from an ultra rare genetic disease called Morquios, he relies on his wheelchair to get about, it is his legs effectively. Another implication of the disease is he is of very short stature standing at 125cm tall , this is his full adult height. The wheelchair he needs like his old one has the ability to raise him up to almost average adult height. This is important for his quality of life and independence. The adaptions in our bungalow rely on the ability to raise up in this wheelchair, going into shops and reaching things off the shelf, going to the bar! At the moment due to the unreliability of the chair he has and without a car he has lost most of the independence he had come to enjoy.

    As Jack is nearly 21 there are very few charities that you can approach for help with funding for powered wheelchairs. It's crazy as there are quite a few that are available for under 18's. Do people think once you get over 18 you don't need a wheelchair anymore? When we received the quote for a new chair it was mind blowing given that the local NHS wheelchair service has allowed £2300 to replace his old chair on the voucher scheme. Jacks wheelchair is unavailable though the NHS hence our appeal for help.

    To make matters worse Jacks younger brother Lewis who has the same condition needs his powerchair replacing to due to age and wear and tear. "Luckily " he is under 18 so we have applied to other charities to see if they can help otherwise the total needed would be close to £35,000. As parents we are trying to do right by our children.

    Updates

    8

    • Paul Bird2 months ago
      Paul Bird

      Paul Bird

      2 months ago

      We would like to thank everyone who has helped us get where we are. We have today received confirmation that a multi millionaire benefactor who wishes to remain anonymous has agreed to fund the shortfall in order to get Jack his wheelchair! What a start to the year!

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    • Paul Bird2 months ago
      Paul Bird

      Paul Bird

      2 months ago

      Well a month over ,it has been itchy and scratchy at times and the grey seems to be outstripping the brown both in number and length. who would have thought grey hair grows faster? Not sure if this is the new me! Any how thanks to everyone who has supported us and now over to Julie to GO DRY. given her liking of Budweiser it's going to be a challenge.

      Update from the Page owner

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    • Paul Bird3 months ago
      Paul Bird

      Paul Bird

      3 months ago

      Well 5 days in and the stubble is growing! I'll be able to stop apologizing to people soon for looking like I've just been too lazy to get a shave. Thanks to all who are backing us and Trevor who has his own page going for Jack, under Trevor Yeoman.

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    8 months ago

    Paul Bird started crowdfunding

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    Supporters

    31

    • Kathryn Haywood

      Kathryn Haywood

      Dec 5, 2017

      Hi Julie and Pail - Good luck with your challenges from the Haywoods x

      £20.00

    • Sally Fisher

      Sally Fisher

      Dec 3, 2017

      £10.00

    • william hoare

      william hoare

      Dec 3, 2017

      All The Very Best Paul And JulieWith All Our LoveBill, Shelley And Mitchell xx

      £20.00

    • Helen Parker

      Helen Parker

      Dec 2, 2017

      Good luck with the challenges Paul and Julie!! Let's hope you are able to get the money you need!!

      £10.00

    • Jo Bryce

      Jo Bryce

      Dec 1, 2017

      Good luck - especially with the dry January! X

      £2.00

    • Sarah Bird

      Sarah Bird

      Nov 30, 2017

      Good luck Julie and Paul! I think the beard will suit you Paul and I want regular photo updates! Good luck for January Julie!Such a lovely family, you deserve the help. Love Sarah, Jase & James xx

      £10.00

    • Clare Hughes

      Clare Hughes

      Nov 30, 2017

      Hope jack gets what he deserves.With love Clare John George Xxxx

      £20.00

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    About Crowdfunding
    About the fundraiser
    Paul Bird

    Paul Bird

    Leeds, United Kingdom

    Hi I'm Paul, married to Julie and proud father of two fantastic boys with a ultra rare disease. We learned 21 years ago that you have to fight for everything, especially when you start the race at a disadvantage. Anyone out there in our position knows what I am talking about.

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