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£1,925raised of £1,900 target by 57 supporters

Weʼre raising £1,900 to buy Jacob a specially adapted trike. Jacob has a life limiting condition that causes disability, so he's unable to ride a bike.

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Story

Jacob has a condition called Mucopolysaccharidosis Type 1, Hurler Syndrome. This is a rare, life limiting metabolic condition that causes both physical and learning disabilities. He underwent a bone marrow transplant at 18 months old to halt the diseases progression however he still suffers a variety of symptoms on a daily basis. He has problems with his lungs and his stomach and he’s predominantly fed through a tube. His entire skeleton also grows abnormally meaning he has reduced mobility, chronic pain and wears a back brace. He also suffers emotional and psychological behavioural problems such as severe anxiety and he is currently undergoing tests for Autism.

His 3 year old brother recently got his first bike and Jacob has been trying to get on it and have a go ever since! He keeps asking us for a bike of his own so I found Tomcat trikes online and arranged a trial of one of their specially adapted special needs trike. Jacob absolutely loved the trial ride of the trike and he was actually managing to peddle the bike himself, which is a huge milestone for him! This trike will enable him to feel the same as his brother and we’ll be able to take them for bike rides together without Jacob having to be in his wheelchair. The peddling action will also strengthen his legs, which as he suffers from hyper-mobility will be really beneficial. It could potentially allow us to delay a surgery that is currently needed on his legs if they were to get a bit stronger.

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Updates

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  • Ken & Sarah White2 months ago
    Ken & Sarah White

    Ken & Sarah White

    2 months ago

    We are getting close now! Massive thanks to everybody has donated. You are awesome! Please continue to share so we can reach the target and bring Jacob the joy of riding his own special trike.

    Share this update to help us raise more

2 months ago

Ken & Sarah White started crowdfunding

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Page last updated on: 7/18/2018 7:27 PM

Supporters

57

  • Clare, Sharon and Kieran xxx

    Clare, Sharon and Kieran xxx

    Jul 18, 2018

    £25.00

  • Nigel & Sharon Eaton

    Nigel & Sharon Eaton

    Jul 16, 2018

    OK mate, we reckon you've waited long enough. Go get your trike! :)

    £268.00

  • Elaine Worsfold

    Elaine Worsfold

    Jul 11, 2018

    xx

    £5.00

  • Tracy Gray

    Tracy Gray

    Jul 7, 2018

    £10.00

  • TWOT’s, their other halves, present and past.

    TWOT’s, their other halves, present and past.

    Jul 6, 2018

    A wonderful idea and let’s get Jacob his bike ASAP. He’s a wonderful little boy who brings a smile to the faces of everyone he meets.

    £120.00

  • Mandy whapshott

    Mandy whapshott

    Jul 4, 2018

    £10.00

  • D Perry

    D Perry

    Jul 3, 2018

    Good luck with the bike, don't let Ken on it, he is to big old and grumpy

    £20.00

Ken & Sarah White

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Ken & Sarah White

Ken & Sarah White

#Pay- it-Forward #Contribution

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