Weʼre raising £1,900 to buy Jacob a specially adapted trike. Jacob has a life limiting condition that causes disability, so he's unable to ride a bike.
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Jacob has a condition called Mucopolysaccharidosis Type 1, Hurler Syndrome. This is a rare, life limiting metabolic condition that causes both physical and learning disabilities. He underwent a bone marrow transplant at 18 months old to halt the diseases progression however he still suffers a variety of symptoms on a daily basis. He has problems with his lungs and his stomach and he’s predominantly fed through a tube. His entire skeleton also grows abnormally meaning he has reduced mobility, chronic pain and wears a back brace. He also suffers emotional and psychological behavioural problems such as severe anxiety and he is currently undergoing tests for Autism.
His 3 year old brother recently got his first bike and Jacob has been trying to get on it and have a go ever since! He keeps asking us for a bike of his own so I found Tomcat trikes online and arranged a trial of one of their specially adapted special needs trike. Jacob absolutely loved the trial ride of the trike and he was actually managing to peddle the bike himself, which is a huge milestone for him! This trike will enable him to feel the same as his brother and we’ll be able to take them for bike rides together without Jacob having to be in his wheelchair. The peddling action will also strengthen his legs, which as he suffers from hyper-mobility will be really beneficial. It could potentially allow us to delay a surgery that is currently needed on his legs if they were to get a bit stronger.
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- 2 months ago
Ken & Sarah White2 months ago
We are getting close now! Massive thanks to everybody has donated. You are awesome! Please continue to share so we can reach the target and bring Jacob the joy of riding his own special trike.
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Ken & Sarah White started crowdfunding
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Clare, Sharon and Kieran xxx
Jul 18, 2018
Nigel & Sharon Eaton
Jul 16, 2018
OK mate, we reckon you've waited long enough. Go get your trike! :)
Jul 11, 2018
Jul 7, 2018
TWOT’s, their other halves, present and past.
Jul 6, 2018
A wonderful idea and let’s get Jacob his bike ASAP. He’s a wonderful little boy who brings a smile to the faces of everyone he meets.
Jul 4, 2018
Jul 3, 2018
Good luck with the bike, don't let Ken on it, he is to big old and grumpy
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