Hi as some you may or not already know my 4 year old daughter Lotty has Pectus, This is a type of chest wall deformity that in many cases is a cosmetic condition but can causes heart and lung issues, Lotty herself already sufferes with shortness of breath and is awaiting a cadriology appointment.

At present she currently only has a mild form of pectus but this is likely to worsen as she gets older as her bones and muscles develop. Treatment is most successful before the age of 7 years. Treatment being a brace fitted to the chest that teaches the chest to grow correctly, the brace is non invasive and is not painful, I have been in touch with many parents whose children have had successful treatment and others who are currently receiving treatment. This treatment is currently not available on the NHS but we have seen and been accepted for treatment by the Pectus specialist Doc Stavroulais who is a consultant thoracic surgeon. Although at a young age, Lotty is very aware that her chest is different to others and asks regularly why she has a pointy chest.

Treatment is currently in the region of £3700, so I’m reaching out to family, friends and anyone else who would be willing to help me towards my target.

Thank you for taking the time to read this and thank you in anticipation for your support. Please feel free to share my story. If anyone has any questions please do not hesitate to message me. Jade & Lotty

watch this space for updates on fundraising challenges we aim to complete in an effort to meet our target!