Ben suffered from cystic fibrosis since he was born we did nt find out he had his illness till he was 2 weeks old,all his life was spent mainly housebound due to being so prone to infection.he spent most of his childhood in bristol childrens hospital for 2-3 weeks of anti biotics.when ben turned 18 he transitioned over to the bri as he was classed as an adult,this is where things changed drastically,he did nt like us going to clinic with him and said he d be fine on his own.but the truth behind this was he was becoming so sick he wanted to keep it from us all so we were nt hit with the awful truth of ben meeting his death.he would say to us after clinic my sats are 98% my lung function is 69% etc and led us to believe he could still have a transplant.but that was nt the case we had 3 days and our world was shattered and ben lost his longtime battle with cf.life will never be the same for us as a family as nothing seems right without ben his siblings are all left with a big hole in there life without him.we had a headstone bespoked especially for ben but its £6,500 we ve paid £2,500 but still have £4,000 to go so my sister from another mister has kindly said she ll shave all her hair off if we raise £1,500+ so it would be amazing if we hit this and more so we can also put some money into the cf trust for research,making our story public will defo help our cause many thanks the green family