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Kate Ogborne raised £6,381 from 137 supporters.

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Closed 31/01/2018

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£6,381raised of £5,000 target by 137 supporters

    Weʼve raised £6,381 to get Boo (Jake Ogborne) " electric wheels" for his self propelling wheelchair

    Bristol, United Kingdom
    Funded on Wednesday, 31st January 2018

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    Story

    Jake was diagnosed with Spinal Muscular Atrophy type 3 at the age of 4. SMA is a genetic, degenerative neuro-muscular disease which has been passed to Jake from myself and Dave. Obviously we did not know we were both carriers of this defective gene so it was devastating when Jake was diagnosed as the guilt we felt was unbearable. We still live with this on a daily basis but we try to stay strong as his condition worsens.

    Since the age of 4 he has had a life of hospital appointments, physiotherapy, hydrotherapy, orthotics, consultants, occupational therapy ... you name it, he's had the appointment! He's gone through life with a huge smile, an infectious laugh and lots of positivity BUT.....

    Over the last six months his condition has deteriorated quite rapidly and he is now unable to walk unaided so uses his wheelchair full time. As his muscles weaken all over his body, his arms are finding it harder to propel himself in his manual wheelchair. He REFUSES to go into an electric wheelchair as this, he thinks, will make him look" too disabled".

    We have done our research and the wheels that we need for his K-series wheelchair are battery powered which will help him to get around without too much strain on his upper arms, so conserving his precious energy for the things he likes to do.

    One of my incredible friends has already raised a lot of money towards his wheels by doing a gruellng four day cycle ride across the Alps. (A HUGE thank you Julian Cook, you truly are a very generous man).

    There is a newly released treatment out there for SMA sufferers called SPINRAZA. This is currently NOT available to Jake because the NHS can't afford it!! This has been devastating news for all of us as we watch him weaken so any financial help towards his wheels or setting us on the road to paying for SPINRAZA ourselves (along with donations) would be INCREDIBLE.

    I know so many of our friends have asked about donating to help Boo so here is your chance ! THANK YOU SOOO MUCH xxx

    LAST THING: We are having a "Boo's Wheels" fundraiser on FRIDAY 10TH NOVEMBER at The Thunderbolt, Bath Road in Bristol where Dave will be headlining with his band, THE BLUE BUS and my gorgeous friend Tegan will be supporting with her band FURLINED. We will also have some amazing teenage performers. It;ll be a fun night so please do come along and support Boo. Tickets are £10.00 and if you click on the 'donate' button and leave a message along with your email address, I will email through your ticket. THANK YOU THANK YOU THANK YOU THANK YOU XXX

    We're also after RAFFLE PRIZES so please get in touch if you'd like to donate a prize... Again, THANK YOU xxx

    Thank you for reading and helping xxx

    Updates

    6

    • Kate  Ogborne7 months ago
      Kate  Ogborne

      Kate Ogborne

      7 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Kate  Ogborne9 months ago
      Kate  Ogborne

      Kate Ogborne

      9 months ago

      We've reached target and beyond !! Thank you so very much to EVERYONE who has supported us. We are so humbled ... Thank you xxxxc

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    • Kate  Ogborne9 months ago
      Kate  Ogborne

      Kate Ogborne

      9 months ago

      Wow wow wow and thank you ALL so very much. We're nearly there !!! So looking forward to Friday 10th at The Thunderbolt. It'll be a great night for sure .. thanks again xxx

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    1 year ago

    Kate Ogborne started crowdfunding

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    Page last updated on: 12/22/2017 4:06 PM

    Supporters

    137

    • Anonymous

      Anonymous

      Nov 21, 2017

      Sorry I missed this before. Glad the fundraiser went well :-)

    • Paul Dollin

      Paul Dollin

      Nov 18, 2017

      Best Wishes from the Dollins and Henry and Rosie

      £50.00

    • Sharon Grainger

      Sharon Grainger

      Nov 17, 2017

      Sorry it’s so late in the day x

    • Kate Rooke

      Kate Rooke

      Nov 17, 2017

      From an angle friend ,isaac

      £10.00

    • Crystal  Mohr

      Crystal Mohr

      Nov 17, 2017

      From Oscar Mohr 😀

      £10.00

    • Jane Nicholls

      Jane Nicholls

      Nov 17, 2017

      Happy to support such a great cause :)

      £10.00

    • Anonymous

      Anonymous

      Nov 16, 2017

      Hi Jake, this is from Anango's friend Mathieu.Hope this will help you and ease your life!Best wishes.

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    About Crowdfunding
    About the fundraiser
    Kate  Ogborne

    Kate Ogborne

    Bristol, United Kingdom

    I'm his very proud mummy !!!

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