Weʼve raised £510 to by doing the Reigate Half Marathon, to help Nicholas get the life-saving treatment he needs.
- Reigate, United Kingdom
- Health and medical
- Time left
- Funded on Sunday, 17th September 2017
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Nicholas is a 5 year old boy in reception at our children's school.
Nicholas was born with a rare congenital condition, partial deletion of a chromosome. It is so rare that it is defined by the symptom rather than a name. At only 5 years old, Nicholas has had 9 operations. He has generalised multisegmental lymphedema, which has made one hand swell disproportionately, and he has a mass in his abdomen, which is also putting huge pressure on his heart. His treatment really consists of dealing with each symptom as it occurs, and prolonging his life. There is no systemic cure.
Now his mum, Rebecca, has taken out a bank loan to take him to Boston for assessment by a specialist team who think they can help Nicholas with various treatments not available on the NHS. This photo was taken just 3 days ago. The money raised in this campaign will be used to fund the trip and initial treatment, if indicated. If a treatment appears to be working, this will build evidence to continue this on the NHS.
Nicholas cannot be cured, but with help his quality of life can be supported and his life extended for as long as possible. Any money not used will be donated to Children in Need.
Nicholas is a lovely sunny little boy, who is very popular at school.
We are raising money through crowdfunding because in the UK you cannot set up a charity for the benefit of only one person!
Updates appear here
James Harrison started crowdfunding
Leave a message of support
Sep 16, 2017
Sep 15, 2017
Sep 13, 2017
Good luck James and I hope the Mrs will have the hot tub & bubbles ready on your return home afterwards!!Louisa David and the girls x
Sue dove care of james
Sep 12, 2017
Sep 10, 2017
fair play to you mate!
Sep 9, 2017
Good luck James -Everyone can run a few miles, only winners can run a half marathon. And remember Pain is just French for bread! Love Dick and Alison
Sep 4, 2017
Good luck, and for a great cause
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