GRACE, is an incredible little girl who’s life isn’t just simple being diagnosed with a rare genetic condition called RHOBTB2 which consists of Seizures, Movement disorders and global development delay which prevents her walking or talking. Grace is 1 of 33 in the world with this disease that isn't treated via NHS!

Grace unfortunately cannot do everyday life such as playing with their friends and enjoy the freedom to go wild as a child usually would her day consists of daily therapy. Dystonia is another illness that Grace has which causes full body muscle cramps that can cause her severe pain.

Helping raise money will give her the opportunity of a future and to be happy and I need your help as well as my own motivation to help this wonderful little girl.

I will participate in the SPARTAN UK RACE - SATURDAY 7th MAY 2022

21K RACE , 21 OBSTACLES

*I beg you wonderful people please share as much as you can i really appreciate whatever you give, it all counts..!