Weʼve raised £0 to So that I can travel to America to participate in a trial to find treatment for multiple endocrine neoplasia
- Closed on Wednesday, 17th January 2018
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I've suffered from multiple endocrine neoplasia 2B a rare form of thyroid cancer since birth at six I was officially diagnosed and had to have surgery to remove tumours almost every year. In July 2010 I had my last surgery which almost ended my life doctors then said they couldn't do any more it was to dangerous. The National institutes of health in maryland USA where then discovered they were looking for patients with MEN2B to participate in a drug trial to try and stop the tumors from growing or even shrink them. In December I flew over and started the medication. For four years I travelled to the states regularly to collect the medication and be reviewed each time I had good results the tumors didn't grow and showed they were shrinking slightly. In 2014 the drug became available in the UK I started travelling to London every month to collect the medicine and be reviewed. Getting better i started to think about starting a family but my dreams were soon shattered when I was told I probably couldn't have children. However in 2016 while in America having my yearly checks I discovered I was pregnant I was told it could be dangerous to carry and even if I did the baby could be born with defects but I wasn't about to let the opportunity to have my own child be taken away so I went ahead with the pregnancy knowing it might not end like I hoped. On Christmas day 2016 6 weeks before her due date Nova Holly was born my healthy little 4lb 5oz bundle of joy. Although there was a 50/50 chance she could have had MEN2B she testing negative Nova is now almost 8 months old and doing great. Since finding out I was pregnant I have not been on the medicine I've been having tests showing I'm stable. Although I can now get the medicine in the UK I'm still going to the states yearly to help find new treatments for when this one eventually stops working this is so important to me if it wasn't for them me and my daughter wouldn't be here. Thank you for reading please donate
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