In February 2018 our son was born with hypoplastic left heart syndrome with an intact atrial septum where he fought for 9 hours until we were told that he does not qualify for surgery. He sadly passed away the same day. On New Year's Day we found out we were expecting our precious rainbow baby, at 16 weeks we were told she had hypoplastic left heart syndrome too, but we were given better odds of 75% survival rates. Until our world came crashing down at 20 weeks, we were told our babies pulmonary vein was obstructed and that they would not offer surgery. We found it hard to believe and went further seeking second, third and fourth opinions travelling over 300 miles to find a hospital that would operate, we had an MRI at 30 weeks in London where they confirmed her diagnosis which resulted in finding out that the surgery she needs has a 100% mortality rate for her condition and no matter how much we push, none of the hospitals we reached out to will take a risk with surgery after pleading multiple times with them. We're heartbroken and in 4 weeks we have to deliver our precious rainbow baby girl, knowing that she will not live longer than a day and our hearts are broken. Our money has dropped by over half since we buried my son in 2018 and we're struggling so much, it's so hard having to go through this but every day I fear that I'm going to let her down and not be able to give her the send off she deserves. 💔